Hi - I am new to this forum. I have a little boy - christopher, who is 9. He suffers from autism, SLD, and seizures.
His seizures are tonic clonic which often go into status - last one was 5 weeks ago and went on fully for 50 minutes. Its the first one he has had for years so we are a bit concerned. He also has complex partials when unwell and absence seizures regularly.
He has severe learning disabilities and autism. He is not on any meds at the mom as he was weaned of epilim a few years ago when the seizures stopped. We are trying now to see what the seizure type and pattern is before considering meds again. (TBH don't want to go down the med route is poss as he has just started talking - 10 words - and just got toilet trained in the last 6 months)
We do however now have midazolam for emergency situations.
Would love to hear from any other parents.
His seizures are tonic clonic which often go into status - last one was 5 weeks ago and went on fully for 50 minutes. Its the first one he has had for years so we are a bit concerned. He also has complex partials when unwell and absence seizures regularly.
He has severe learning disabilities and autism. He is not on any meds at the mom as he was weaned of epilim a few years ago when the seizures stopped. We are trying now to see what the seizure type and pattern is before considering meds again. (TBH don't want to go down the med route is poss as he has just started talking - 10 words - and just got toilet trained in the last 6 months)
We do however now have midazolam for emergency situations.
Would love to hear from any other parents.