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Andrew Andrew is offline

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  1. nicholas:)
    01-20-2012 05:37 PM - permalink
    nicholas:)
    Hi! Just passing through!
  2. Zoe
    02-09-2010 09:28 AM - permalink
    Zoe
    Hi Andrew,
    I haven't been on this board for a while. I'm one of the moderators. i remember now some of your earlier posts. When were you diagnosed with pyridoxine dependency? How are you doing now?

About Me

  • About Andrew
    Seizure Background
    Here is my story regarding B vitamins:

    I had my first seizure at two weeks old. I spent the first six months of my life in and out of hospital. Doctors were mystified by my illness. None of the ‘normal’ antiepileptic drugs that were administered had any positive effects. At this time I was having many ‘different types’ of seizures a day some of which went status. Countless tests were being done including, EEGs, lumber punctures… etc. A top pediatrician from the main city hospital told my mother that he was going to a meeting. He said he would talk about me in the hope that someone there would be able to help us. At this meeting there was a professor who was doing research into childhood epilepsy. He suggested a trial of Pyridoxine Hydrochloride (vitamin B6). Pyridoxine Hydrochloride was administered (I was less than five months old). Within two to three days my mother noticed a big difference in me. I’d stopped having severe seizures. Because of the positive effects that Pyridoxine had on my seizures doctors slowly weaned me off all the antiepileptic drugs (this was back in 1970-71). I’ve been prescribed Pyridoxine Hydrochloride on a daily bases ever since.

    I attended a main stream school thanks to vitamin B6, which at that time was the only medication I was using to control my many different types of seizures.

    I was still experiencing my aura (seeing colours) when taking vitamin B6 only. So in 1990, with my doctor's consent, I added a multi B complex tablet to my daily medication. This stopped my aura.

    I have only used B vitamins (NO special Diets, NO extra minerals & No Anti-epileptic Drugs) to control a rare metabolic condition known as 'PNPO Deficiency' (which has now been confirmed via a genetic test).

    Info. regarding PNPO Deficiency:

    https://metabolicas.sjdhospitalbarcelona.org/sites/default/files/pnpo_deficiency_eng.pdf

    Without B vitamins (mainly vitamin B6 (pyridoxine HCL)) I would probably be mentally impared or worse due to severe seizure activity (Status Epilepticus).

    http://memo.cgu.edu.tw/cgmj/3301/330101.pdf

    In my lifetime I have had two unsuccessful trials of Anti-Epileptic Drugs (AEDs).

    B vitamins - for me - are the equivalent of your AED(s).

    My seizures are Drug resistant (Refractory to Anti-epileptic Drugs)

    In 2005 I was diagnosed with Dyslexia and in 2011 I was diagnosed with Asperger's Syndrome.

    http://www.autism.org.uk/asperger

    https://www.bdadyslexia.org.uk/

    https://autismcanada.org/living-with-autism/treatments/biomedical/nutritional/b6-and-magnesium/

    http://discovery.ucl.ac.uk/1413008/1/FINAL%20Vitamin%20B6%20and%20serotonin%20metabolism%20in%20neurological%20disorders%20of%20childhood%20020412%20%281%29.pdf

    https://www.researchgate.net/publication/224830706_Molecular_Defects_of_Vitamin_B6_Metabolism_Associated_with_Neonatal_Epileptic_Encephalopathy

    https://www.ncbi.nlm.nih.gov/pubmed/14755455

    It is great to know that research is still on going regarding Vitamin B6 Dependent Seizures.

    https://www.gosh.nhs.uk/news/latest-press-releases/2016-press-release-archive/vitamin-b6-lifesaver-children-severe-epilepsy

    **DO NOT ALTER ANY MEDICATION WITHOUT YOUR DOCTOR'S CONSENT**
    Treatments
    Vitamin B6 & Multi B complex tablet
    Location
    England
    Interests
    CAD (mainly 3D), Cosmology, Partical Physics, Art, Music, Vitamins, Fractals, Evolution... Etc.

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General Information
  • Join Date: 10-25-2007
  • Referrals: 0

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