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Debbie53 Debbie53 is offline

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About Me

  • About Debbie53
    Seizure Background
    I was diagnosed with epilepsy when I was 18 in 1982. Now I am having symptoms associated with my type of epilepsy: feeling sick with jerking, ground coming up towards me. My last seizure was December 2016 when I was taking zonisamide which was an absolutely awful AED. When first diagnosed I took Epanutin and Tegrotol. Both were ineffective. Sodium valproate was my next one. Took it for 33 years. Now I am taking lamotrigine but now I am still having jerking and twitching which is awful and scary. I've been to see my NEW neurologist and he has told me that my epilepsy is Juvenile Myoclonic. I think I have what is known as Tonic Clonic as well.
    Treatments
    lamotrigine 125mg twice daily but I might be added AED as control is limited
    Location
    North East of United Kingdom, Great Ayton
    Interests
    Creative Writing mainly done on my PC, volunteering at my local library/community centre

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General Information
  • Last Activity: 03-02-2019 08:21 AM
  • Join Date: 03-30-2018
  • Referrals: 0

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