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Dutch mom Dutch mom is offline

Super Moderator / Ketogenic Smile

Visitor Messages

Showing Visitor Messages 1 to 10 of 36
  1. seagull
    03-12-2017 03:23 AM - permalink
    seagull
    Hi hope all ok as it can be in given situation.I have seen news and not good in holland all those Turkish demonstrations hope it not effecting you.
    Thinking of you carole
  2. seagull
    09-10-2016 06:07 PM - permalink
    seagull
    Thank you dm
  3. seagull
    04-13-2016 10:29 AM - permalink
    seagull
    Hello.did you post there something in Paris about David Bowie if so I want to go.can you send me details.I still not believe he dead
  4. JJR1956
    02-14-2016 06:30 PM - permalink
    JJR1956
    Thank You
  5. seagull
    12-04-2015 05:08 AM - permalink
    seagull
    Did you Fb me.my Fb account real mess
  6. CathyAnn31
    08-16-2015 06:07 PM - permalink
    CathyAnn31
    So happy you're back!
  7. Ruth
    08-06-2015 09:53 AM - permalink
    Ruth
    Pinkattitude is a grandmother. She has posted. Great news!!
  8. nicholas:)
    06-21-2013 02:46 PM - permalink
    nicholas:)
    missing you
  9. captnkirk
    05-22-2013 10:49 AM - permalink
    captnkirk
    Found a way to you! Thought you might have some helpful suggestions.

    I have a son 13, Lennox-Gastaut Syndrome since 99 and on keto diet and 2 anti-epileptic drugs since 2002. We can't get team to remove either and not convinced they are not working against each other. Still has many seizure daily and started into clusters this last week. Tylenol seemed to help with no fever but still needing 2-3 ativan nightly to settle. Looking for guidance and encouragement re what next to try. Thinking diet isn't managed well. Running lo on ideas and hope. Thnks
  10. Chaz1
    12-09-2012 10:29 AM - permalink
    Chaz1
    I cannot begin to tell you how much I appreciate your help….

    big warm hug, a million thanks and 3 Dutch Kisses.

About Me

  • About Dutch mom
    Seizure Background
    My 12-year old (born July 1999) eldest (special needs) son was diagnosed with Lennox Gastaut syndrome and is double handicapped due to post-natal braindamage. He is succesfully on the ketogenic diet since June 2004 and is med free. Since 2003 I'm one of the moderators of a Dutch parent support group with a forum for parents of children with a difficult to control epilepsy and children diagnosed with one of the known childhood epilepsy syndromes. I am honoured to be a moderator on the CWE team, it's a great place to be.
    Treatments
    tried >10 AED without succes. Since 2004 succesfully on the ketogenic diet and since 2005 AED free
    Location
    Country: The Netherlands ; City: Dordrecht
    Interests
    Being happy doesn't mean everything is perfect,it means you have decided to look beyond imperfection
  • Signature
    Mom to a 17-year old son with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free

    Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection.

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General Information
  • Last Activity: 03-27-2018 08:58 AM
  • Join Date: 12-08-2007
  • Referrals: 0

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