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Elaine H Elaine H is offline

Weaving the Community Fabric

Visitor Messages

Showing Visitor Messages 11 to 20 of 145
  1. josieb
    02-23-2015 11:42 AM - permalink
    josieb
    Hi Lainey! I sent you a private message on here and on Facebook. Would love to talk with you, my friend. Love, Josie
  2. Cinnabar
    11-30-2014 08:28 AM - permalink
    Cinnabar
    Trying to contact you here. This is such a pain!
  3. Cinnabar
    11-30-2014 08:26 AM - permalink
    Cinnabar
    Lainy, I tried contacting you via e-mail but I got a failure notice again. I guess we could write here or you could send a new e-mail. I should be able to get into that.
  4. joey
    10-10-2014 10:17 PM - permalink
    joey
    Hello again. I am sorry my hellos are spread apart.date wise. I just can't be on screen too long. But I hope all is good.
  5. Belinda5000
    03-21-2014 08:02 AM - permalink
    Belinda5000
    Hello Elaine
    So how're you doing well I hope? I was offline about 2 weeks when my computer went down. My neurologist is talking about the Ketogenic diet for me or a new drug.

    Be good Belinda
  6. joey
    02-06-2014 01:33 PM - permalink
    joey
    Hello Elaine its been a long time. I just wanted to stop by and say hi.
  7. Elaine H
    12-12-2013 10:54 AM - permalink
    Elaine H
    Hi Randy
    You have a great Xmas ok, and do keep in touch in 2014, I will get the book finished, it's written just not typed, I don't know how Danielle Steele does it!! Maybe I should get a ghost writer? No that'd be cheating. There are a lot of new mebers, which is a good thing eh, it is such a great site, and the more the merrier as we say here!
    Have a great Xmas and New Years Eve, chat again in 2014! Have fun hun!
    Regards

    Elaine X
  8. RanMan
    12-03-2013 12:47 PM - permalink
    RanMan
    Hi Lainey,
    I hope you a "familiar face". I'm glad you're doing alright.
    I'm not doing too bad but the rest of my family is doing awful. (I could write a book)
    BTW, How's your book coming?
    Anyway, Glad to hear from you, I thought you forgot about me, like you said, sooo many new members.
    TTFN
    Merry Christmas

    Randy
  9. cadsgj
    10-30-2013 12:03 PM - permalink
    cadsgj
    Just out of curiosity, are you thinking about another surgery? Was your first one pretty good getting through it? My neurologist first brought it up to me, we talked for about 5 minutes - my mind mostly remembers two times with three surgeries - he opted to change my meds, take video EEG and MRI, then after a few months get back together to see just where we made it. I really feel bad for your nightmare period of seizures finding their way back, so I certainly would understand wanting it taken away again... fingers crossed for you either way, fingers crossed...
    Glenn
  10. Cinnabar
    10-05-2013 02:18 PM - permalink
    Cinnabar
    Hi, over here. Read and replied in your recent thread. Just my two cents and hooray! I wrote a poem this afternoon and just posted. xoxo

About Me

  • About Elaine H
    Seizure Background
    Diagnosed in 1986 aged 23! Forceps birth the cause, parents divorce & stress triggered it. Had a Temporal Lesionectomy in 2000, clear for 5 years, it came back with a vengeance. Had Right Temporal Re-section in 2008. I now have Atonic seizures, and in Summer 2013, as a result of the second surgery,I developed Blepharospasm, a focal Dystonia of the eye muscles. I give talks on my experiences with epilepsy, my book is written, but I'd prefer a happy ending!!
    Treatments
    Keppra 1,500mg x am and 1,500mg pm, Oxcarbazepine 900mg x am 900mg x pm, Zonisamide 150mg x am 150mg x pm , Perampanel 12mg pm Clobazam (for cluster seizures only) 10mg x am 10mg x pm
    Location
    Northamptonshire, England
    Interests
    Collect antique cameras,I love world travel, anything to do with the brain, & historical buildings.

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General Information
  • Last Activity: 08-14-2018 06:06 AM
  • Join Date: 03-30-2008
  • Referrals: 1

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