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Elaine H Elaine H is offline

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Showing Visitor Messages 1 to 10 of 145
  1. Elaine H
    11-27-2017 07:53 AM - permalink
    Elaine H
    I'd like to change all my details, I don't know old password and it won't let me set a new one.
    Appreciate your help please.
    Thanks
    Elaine H
  2. joey
    06-22-2017 08:19 AM - permalink
    joey
    Hi Elaine. It's Joey. I'm just stopping by to say hi since its been years since I've been here and I Dont write much but I thought I had to at least say hi to my favorite friend on here ttill next time.
  3. opusde1988
    05-04-2016 10:11 AM - permalink
    opusde1988
    Happy Birthday Elaine!
  4. Bernard
    05-04-2016 07:48 AM - permalink
    Bernard
    Happy birthday Elaine!
  5. joey
    04-21-2016 10:27 PM - permalink
    joey
    I understand. I just hope your health gets better. I'm not really a talker but get well soon!
  6. Elaine H
    02-04-2016 03:57 AM - permalink
    Elaine H
    I really must apologise to everyone who has written to me over the last couple of years and asked how I am etc, and I haven't replied. Things are really not going well since late Summer 2013, that's when I developed the Blepharospasm, and basically, my eye muscles just won't keep my eyes open very well, it's more difficult to deal with than my epilepsy. Also, last Summer, I had an Atonic seizure, and suffered deep dermal burns to my right hand, I'm waiting for surgery, and typing is tricky as my fingers are webbing, and it's so painful. My seizures are now Atonic, not nice. So guys, to everyone that has written, and had no reply, I hope this explains things. I have three monthly shots of botox in my eyelids, and if the hand surgery helps, I hope to be back on CWE more regularly. Happy New Year to everyone!! xx
  7. RanMan
    01-08-2016 10:40 AM - permalink
    RanMan
    HELLO Lainey,

    HAPPY NEW YEAR TO YOU.
    Hope you have a very good 2016.

    Don't know about you but my 2015 was crappy.

    Hope to hear from you soon and we can "compare notes".

    Randy
  8. Belinda5000
    09-21-2015 01:26 PM - permalink
    Belinda5000
    Hello Elaine,

    So how're you doing?
    It seems I can't tell some ppl what I think some time because they think they know it all and they won't return PM.
    I apologiize for taking this out on you. I'm just venting.
    Belinda
  9. Ruth
    08-06-2015 10:03 AM - permalink
    Ruth
    Pinkattitude is a grandmother!! Great news!! She has posted.
  10. Fedup
    05-04-2015 07:58 AM - permalink
    Fedup
    Hope you have a good day, Happy Birthday.

About Me

  • About Elaine H
    Seizure Background
    Diagnosed in 1986 aged 23! Forceps birth the cause, parents divorce & stress triggered it. Had a Temporal Lesionectomy in 2000, clear for 5 years, it came back with a vengeance. Had Right Temporal Re-section in 2008. I now have Atonic seizures, and in Summer 2013, as a result of the second surgery,I developed Blepharospasm, a focal Dystonia of the eye muscles. I give talks on my experiences with epilepsy, my book is written, but I'd prefer a happy ending!!
    Treatments
    Keppra 1,500mg x am and 1,500mg pm, Oxcarbazepine 900mg x am 900mg x pm, Zonisamide 150mg x am 150mg x pm , Perampanel 12mg pm Clobazam (for cluster seizures only) 10mg x am 10mg x pm
    Location
    Northamptonshire, England
    Interests
    Collect antique cameras,I love world travel, anything to do with the brain, & historical buildings.

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General Information
  • Last Activity: 08-14-2018 06:06 AM
  • Join Date: 03-30-2008
  • Referrals: 2

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