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halcyon halcyon is offline

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  1. rudy
    11-30-2008 10:47 PM - permalink
    rudy
    WHAT ? Can't remember taking the infamous Dilantin ? (phenytoin )
    I have been on that since mid-80's. Bone loss and dosage increases push me to Lamotrigene therapy starting tomorrow. Wish me luck !
  2. hawke86
    05-03-2008 06:50 PM - permalink
    hawke86
    Hello Everyone,
    I'm new here to this site. I would like to get to know everyone. I have had epilepsy since I was about two years old. I have had two surgeries to help with my seizures. I have seizures about every other day. Along with seizures I have other medical problems to deal with.
    hawke86

About Me

  • About halcyon
    Seizure Background
    Epilepsy runs in my family on my mom's side with the women only. I have tonic clonic grand mal seizures that last about 5 minutes not counting the time afterwards where I'm doing who knows what. The big seizures started when I was 21 and I've had about 8 documented ones and dislocated my jaw from one. I have had absence seizures, severe migraines, and petit mal seizures since I was a child. My freshman year of college I got mono and instead of resting I continued with school and was prescribed Adderall for "narcolepsy"(I lived alone and didn't realize I was having seizures). Finally someone witnessed one and I was treated by the same neurologist for epilepsy and spent about a year and a half in and out of hospitals on and off of a million drugs scaring off everyone I knew. I had a stutter, couldn't remember a thing, was on about 9 medications, and had trouble with my motor skills. I was told I could never go back to college because of brain damage. My life was miserable, I was so medicated I was a walking zombie. So I said **** that and got myself off of everything and started doing transcendental meditation, acupuncture and had an internist keep writing the esgic and klonopin. I haven't had a seizure in 3 years(oh and I graduated from USC)...but I'm scared I want to get off these meds but I'm afraid of seeing a neurologist again. I want to say right now that I don't recommend doing what I did because I am not a doctor...I just know this is what worked for me. My family acts like those years of my life never happened and I run into people all the time who remember me but who I cannot remember for the life of me. I don't know anyone else who has had to deal with this but ...I don't even know what to say..it's just lonely really really lonely and all people can remember before is me being the girl who always had some "problem" at parties...I've wasted/spent so much of my life getting on and off of drugs that my social skills are horrendous and old friends expect this person that doesn't exist anymore...I'm looking for advice.
    Treatments
    EVERYTHING and I mean everything...lamictal, esgic,fioricet,kolonipin,depakote,topomax,neurontin,trileptal,gabitril,dilaudid and a lot more that I can't remember...
    Location
    Los Angeles
    Interests
    I'm looking for anyone who has advice...I'm scared

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  • Last Activity: 02-22-2008 04:32 AM
  • Join Date: 02-04-2008
  • Referrals: 0

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