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lonnie lonnie is offline

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About Me

  • About lonnie
    Seizure Background
    I was diagnosed. 19 yrs. ago. I am now 59 yrs. old. Married to a highly intelligent high school teacher who is not supportive of epilepsy or any of my several other health conditions.

    I am mother of two grown children and by my daughter am a grandmother of 3 children 6 and under. I will soon have another (5 yr. old step grandson) with the marriage of my son. Of course I will treat him exactly the same.

    After my diagnosis I was in and out of the hospital/hookup several times and never had a seizure there, except for one when I had just been unhooked and the intern said she could tell it was not a true one. My outpatient EEGís were both positive and negative.

    The ultimate validation of epilepsy was 12 yrs. ago, when I was off my meds and had a grid directly on my brain and probes stuck in it. It took three days but then I had 3 seizures in a row which the surgeon said lit up like a Christmas tree. They proceeded to take out my right temporal lobe.

    Now I am confused very easily. I, seem unable to think at times, canít find words and loose thoughts in the middle, have the intellect of a grade-school-er, get lost easily(even-in my small home town or a store.)

    Due to removal of RTL I only recognize people I have known a long time and were significant to me, I have extremely poor balance a lot of the time. I use a cane or a walker if I am outside my house. etc. etc.

    I graduated from college with honors and now feel stupid. I have extremely poor memory (both short and long term)

    I have had every type of seizure; I have gone through several neurologists as they have moved in and out of town. I have been put on every anti-consultant available but have never had my seizures under full control.

    Several years ago my Dr. told me I was having both epileptic and non epileptic seizures (NES). With additional counseling they went away for years but now have been coming back some.
    Treatments
    Lamictal 250mg 2x day Vimpat 50 3x day neurontin 400mg 3x dayClonopen2mgbedtime
    Location
    Lynden, Washington USA
    Interests
    I write encouragement cards to people, cut tendons can't crouchet to go with them anymore

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  • Last Activity: 09-08-2014 12:37 AM
  • Join Date: 07-01-2010
  • Referrals: 0

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