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RanMan RanMan is offline

Too Much Experience with Epilepsy

Visitor Messages

Showing Visitor Messages 21 to 30 of 110
  1. gigi
    05-27-2010 01:48 PM - permalink
    gigi
    Hi RanMan: Hope you are well. Sorry I have been out of touch. Yes, I have side affects from Dilantin. 30 years on the stuff, I have trouble with depression, mostly situational. don't know if that is the medication, or my brain, probably both! I have had T/C's in the past, although not for over 7 years now. I have weird headaches now, so I wonder if something has changed. Am going to a new neurologist soon. I read your latest post. I feel for you, the mood swings are problematic for sure. Write soon, and take care.
    gigi
  2. Elaine H
    05-04-2010 06:26 AM - permalink
    Elaine H
    Hi There
    I just typed out a really long rattling reply to you and was told it was too long, and to cut it by 727 characters, went to shrink it down a bit and it had vanished!! I have to go out in a bit, so I'll write later, I just wanted to say hello and I haven't forgotten you. I had a very nasty wobbler this morning, so I'm still feeling a bit strange, I'll drop you a line later, it's my birthday today, and I'm trying to forget I'm 47???!!! No, not really, sod it, I'm happy enough!! Catch you again soon, I hope you are ok mate?

    lol
    Lainey xx
  3. RanMan
    04-30-2010 11:55 PM - permalink
    RanMan
    Hi Lainey,
    What's new with you on the job front or volunteer front?
    I know that I told you on FB that I was doing great but the reality is:

    Although my "seizure activity" (notice I didn't say epilepsy) has been 95% controlled since 1979, for the last 2 weeks I've been having this really strange aura.
    Every evening starting at 7:00pm all I can smell is stale cigerettes and nobody smokes in the house. It has really been bothering me, and also giving me headaches.

    As well, for about the past year I constantly have "neoropathy" (tingliing and numbness in my fingers and toes).
    My neurologist says this is from long term use of the meds (Duh ~ do ya think?) and cannot be reversed.
    I also have terrible mood swings (I'm having one now) and very poor balance, co-ordination and gait, slurred speach, ED (lots of fun there)

    Other than that, I'm fine. LMFAO

    Randy
  4. Elaine H
    04-06-2010 05:59 AM - permalink
    Elaine H
    Hi Randy
    Sorry for the delay in getting back to you on this topic, I am all over the place at the moment!
    If you would be happy to talk to me about your experiences with diagnosis in 1979, I would love to hear from you. I am still on the look out for an "elderly" person to talk to, someone who was diagnosed in the 30's or 40's, I think that would be a real eye opener, but if you yourself see a significant improvement in epilepsy services, it would be cool to get your perspective on things.
    I hope all is well with you as we go into Spring? I'm still having probs with my complex partial's, but no auras since taking Trileptal (Oxcarbazepine) what a fantastic anti-epileptic drug that is, to rid me of those terrifying auras, only trouble is, I get no warning now before the complex partial's, I meet up with the chap this Friday, to discuss my training to be a counsellor, I just cannot wait and will let you know what happens, I'm glad you liked my photo and talk again soon.
    Lainey x
  5. Birdbomb
    03-30-2010 01:55 PM - permalink
    Birdbomb
    Hey Guy! Thanks for thinking of me. I'm doing better, no more seizures yet but a few not so nice side effects from the dilantin. Balance, dizzy, muddled thinking, aphasia. Hope you're doing fine. Have you seen my new site? If you have a link on your board, you'll need to update the url
    h**p://www.vnsmessageboard.com
    h**P://www.vnsmessageboard.org

    I'll need to have a link to your site posted here


    http://www.vnsmessageboard.com/index...articles;cat=3


    Thanks


    BB
  6. Elaine H
    03-29-2010 10:25 AM - permalink
    Elaine H
    Whhhoooohhhhhh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    I am one happy bird, have a look at my post, i am sooooo haaaapppyyy!!!!!!!!!!!!!

    Talk soon bud

    lol
    lainey xxxxxxxxxxx
  7. Elaine H
    03-28-2010 05:30 AM - permalink
    Elaine H
    Hello There
    Great to hear from you!!! No, I must admit, I was very upset about Ep's Unlmtd, and his unbelieveable negativity towards epilepsy,for a few days, and had a seizure at the top of the stairs! But, luckily Mark has been home, and he kept me calm, what is the point, I know us guys on CWE are positive about being PWE and will all stick together, also, I didn't have a security lock on my FB contacts, and he was going into them, and writing to my mates??!! I couldn't believe it!! As I'm pretty new to Facebook and social networking in general, I wasn't aware this could happen, but I have met some fantastic people over the last few years on here, and I wouldn't want him upsetting things for me!!
    Anyway, keep in touch and I do hope that all is well with you in your world, and you are wobbly free? I've been ok, and my hand is healing well! Write again soon mate!!

    Lol
    Lainey xx
  8. CathyAnn31
    03-23-2010 12:10 AM - permalink
    CathyAnn31
    Seizure in April 2009, another in Aug. Started Lamictal XR in Sept 09 and still take it. So far so good I think. Maybe it has something to do with the "A" months..lol.
  9. Elaine H
    03-20-2010 06:43 AM - permalink
    Elaine H
    Hi There

    I hope that you are feeling better buy the time you read this, and are recovered from your fall, let me know huh?
    Yes, I would be very pleased to hear from you and your experiences when first diagnosed, I am really trying to get hold of someone sort of my Dad's age, early 70,s, but also, would appreciate hearing from you too with your story, if you could include, how you were told, (were they sympathetic,was it kept hushed up?) How were you treated in education, and then of course, employment,and society in general, I would really appreciate it mate?
    I never know whether you can exchange e.mail address's on here or not, I don't want to offend or upset anyone, it's just that it may be easier, do you know my e.mail lainey2010@live.com, I write to a lot of people from CWE so it must be ok, I just never know how much we are allowed to type onto CWE, give it a try anyway, I would really love to here from you.

    Lainey x
  10. CathyAnn31
    03-18-2010 02:29 PM - permalink
    CathyAnn31
    Thanks 4 the friend request.

About Me

  • About RanMan
    Seizure Background
    Grand Mal seizure in 1979 now controlled by medication,
    Periodic break through petit Mal seizures and auras.
    Lost my job of 30 years with the Federal Government b/c of what the side affects of my meds were doing to me.
    I also have Ulcerative Colitis which was diagnosed around the same time as my EP. Doctors say that these two conditions are triggered by STRESS and go hand in hand.
    I lost my drivers lisense in 2002 as a result of a gran mal seizure in my car at a Wal Mart parkinglot.
    Treatments
    150mg of Lamotrigine (Lamictal), 90mg/pheonobarb, 3,000mg/Asacol (for Ulcerative Colitis)
    Location
    Ontario, Canada
    Interests
    Music
  • Signature
    Diagnosed with epilepsy and ulcerative colitis in 1979,
    Been on meds ever since.

    275mg-dilantin/day
    120mg-pheonobarb/day
    3,000mg-Mesasol/day

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  • Last Activity: 08-17-2019 09:59 AM
  • Join Date: 05-04-2005
  • Referrals: 0

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