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RobinN RobinN is offline

Super Moderator / Super Mom

Visitor Messages

Showing Visitor Messages 1 to 10 of 114
  1. RobinN
    10-05-2015 12:39 PM - permalink
    RobinN
    You are very kind Robin
    My life has changed so much since. Rebecca is off skating with Disney on Ice, I have moved to FL and I am blessed to have learned what I have, due to Rebecca's medical issues. Still so much to learn, but I am reading more and more about the brain-gut connection.
  2. AlohaBird
    06-25-2015 06:03 PM - permalink
    AlohaBird
    I don't think you've posted since I joined but I keep running into all your old posts and I keep wanting to reach out and hug you for your insights and research skills.
    Many of the topics you (and Keith) posted about that folks didn't seem ready to hear (e.g. gut-brain connection) have become much more mainstream over the course of a few years.
    If I may be so bold as to speak for CWE, we would love to have you back actively participating in the discussion again if you ever find the time.
  3. AlohaBird
    03-05-2015 08:55 PM - permalink
    AlohaBird
    Hi Robin from another Robin
    I wanted to thank you for bringing the work of Dr. Symes to my attention. His plan is really helping me.
  4. elizabeth8211
    12-04-2013 08:34 AM - permalink
    elizabeth8211
    Hi Robin..

    Would you be able to give an update on how your daughter is doing on the 5-HTP supplement? I really would like to try this but at the same time, the warnings you read on this supplement seem quite intense for some. Please let me know. Thanks
  5. elizabeth8211
    10-03-2013 10:59 AM - permalink
    elizabeth8211
    Hi Robin...

    Would you happen to have any documentation as to what protocol you are following to help your daughter?
  6. Shannon123
    04-23-2013 11:28 AM - permalink
    Shannon123
    Smacking my lips or anything but im going for my wada test on tje 8 and my doc said i habe 11 % chance meds will work for me and they r recommending surgery i just ddon't. Know wjat my seizers r or not please. Help
  7. Shannon123
    04-23-2013 11:26 AM - permalink
    Shannon123
    Partial. Complexe. Seizers i am on vimpact and i was looking up all side effects. On the. Meds. There. Is. Nothing. On. Having. Almost. Real dreams. And. They. R. Not. Scary. But. Just. Weird and. I wake. Up just. Feeling. Tired. And my head. Hearts or sometimes. My actual. Neck hurts. And. Some times i will. Wake. Up in the middle. Of. The. Night i am feeling. Scared. Nd i see something. Im not sure if it is a ora. Or what it is it seems like it fades or something i can't. Exsplain. It i was diagnosed. Last year with partial. Complex. Seizers. When they hooked me uo to tje machines over nite i had 10 plus seizers i never new i had tjem i am so confused the only readon i new is because. My mom saw me smsking my lips t one point but i told her i wad fine and krep doung what i was doing but my mom has not seen me smsking my lips or doung
  8. Shannon123
    04-23-2013 11:15 AM - permalink
    Shannon123
    Hi my name is shannon. Im looking for help or answers i havr partial. Comokexe seizers wnd i am just so lost with wjat is going on is it my meds or am i actualy having seizers anr this site is actually hard topost on is tjere any one oyt t kg ere tjay could give me advisr
  9. petero
    11-14-2012 01:44 PM - permalink
    petero
    awesome - and collapsible for easy storage
    I guess it's easier than I thought
    I imagined they may have been lacquered to make them harder
  10. petero
    11-13-2012 12:59 PM - permalink
    petero
    I love those paper ornaments you made! Can you tell me how you made them?

About Me

  • About RobinN
    Seizure Background
    Daughter age 14 when first seizure occurred on June 23, 2006
    50+ tonic clonic seizures - Diagnosed with hypoglycemia
    Now 22 yrs - med free - seizure free :D
    Treatments
    tried Tegretol, Gabapentin, Lamictal Trileptal now med free, relying on nutrition, vitamin supplements and neurofeedback
    Location
    SoCA
    Interests
    I am an artist, my daughter is a figure skater, currently skating with Disney On Ice
  • Signature
    Robin

    Neurofeedback - Rebecca's Story

    Robin's Challenge

    Knowledge is power and knowledge shared is power multiplied.
    -- Bob Noyce

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  • Last Activity: 09-01-2018 11:10 AM
  • Join Date: 08-02-2007
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