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RobinN RobinN is offline

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Showing Visitor Messages 21 to 30 of 117
  1. Nakamova
    07-20-2012 07:30 AM - permalink
    Nakamova
    Have a very happy birthday Robin! I hope all continues to go well for you and your family.
  2. CathyAnn31
    07-20-2012 01:13 AM - permalink
    CathyAnn31
    Happy birthday Robin. Thanks for all you contribute here, I like your input.
  3. RobinN
    06-16-2012 03:23 PM - permalink
    RobinN
    part two (lost my original message due to it's length and attempting to break it up)

    You might have seen improvement in her health following the surgery due to the antibiotics she was given. It kills all bad and good bacteria. You might consider pro-biotics for gut health. I like Natren Healthy Trinity. I don't know about children's doses. I would call the company. It can't hurt to use this for about a year, keeping notes on it, as you heal her gut. Might be an added reason for the tonsils to get inflamed.
  4. RobinN
    06-16-2012 03:20 PM - permalink
    RobinN
    part one
    I can only imagine the challenge that you have encountered with family. My soon to be ex did the same with my daughter. Yes she can have rice, thought I would try to limit grains for a while if you can. Especially the refined processed ones. Make it a game, and let her keep track of the limited amount you have decided upon. I can't tell you what that would be. A single slice of bread each day. One pasta dish a week. ...?
  5. RobinN
    06-16-2012 03:19 PM - permalink
    RobinN
    part three
    Tell the family to butt out. Nutrition over "diet" has never been known to be harmful. More and more studies are proving the truth to it. If they can't help themselves from going behind your back, then perhaps you need to take a break from them. You would never allow them to give her drugs, and if you are finding the Standard American Diet to be making her sick, this is exactly what they are doing. Find an alternative to her medicine too.
    Good luck
  6. kari.marth
    06-05-2012 01:17 PM - permalink
    kari.marth
    Hello robin, I have a 7 year old daughter Angela. She has "jeavons syndrome" which is idiopathic epilepsy that consists of absence seizures and eyelid myoclonia. None of the medication works. She's not a candidate for surgery. We've tried a lot of diets but it seems almost impossible bc family members think I'm a quack and think I'm cruel for putting her on a diet. So that means they sneak her things. I gave up since we never were truly on the diet because of the things she would get. A weird thing happened after she had her tonsils removed when she was 3 her seizures stopped completely for 3 months. She only ate minimal for 2 weeks when they came back I started to wonder what was really causing her seizures. I started the gard diet 3 days ago. I don't know if I'm doing it 100 % correctly. For cereal I give her gf rice chex. I have a feeling she shouldn't have that . Can she have rice? I also think her medicine has corn syrup or aspartame in it. Any advice would b appreciated. Thank u
  7. Aaleayha
    03-01-2012 07:20 PM - permalink
    Aaleayha
    I did that right brain vs left brain test you posted in 2007. Oh wow! At first I didn't understand but when I stared at her feet and then back up, it changed! It scared me, haha! So I guess I'm both?
  8. BuckeyeFan
    02-19-2012 04:48 PM - permalink
    BuckeyeFan
    All is fairly well here. Unusually warm winter. We had a few cold snaps, but I only used the snowblower once. Just back from a birthday party for my uncle. 90 years old and still works outside with his sons and has a mind better than mine. Great example of a life well lived.
  9. AlissaB
    02-15-2012 01:30 PM - permalink
    AlissaB
    Robin... I have an 8yo son with BRE and we're doing neurofeedback for the last 4 months. I see where you've done this over a year's period of time. Do you have anymore information on your daughter's progress. Cooper can get very stimulated by the treatments, depending on the wire's placement. Did you have a similar experience. I also saw a picture of your daughter doing neurofeedback at home... how did you do this? How did you know where to place the wire? Who did you work with for these types of treatments? I'm desperate for information. Cooper is asaultive at school and we were hoping the neurofeedback would be more helpful. Maybe it will take more time. We've done about 60 sessions 2-3 times a week. I haven't tried 2 a day though. Please if you have the time... contact me <<desperate!
  10. Ruth
    02-13-2012 12:49 PM - permalink
    Ruth
    Stopped by to say Hi. Sorry that I have not been around more often. Hope your family is doing well.

About Me

  • About RobinN
    Seizure Background
    Daughter age 14 when first seizure occurred on June 23, 2006
    50+ tonic clonic seizures - Diagnosed with hypoglycemia
    Now 22 yrs - med free - seizure free :D
    Treatments
    tried Tegretol, Gabapentin, Lamictal Trileptal now med free, relying on nutrition, vitamin supplements and neurofeedback
    Location
    SoCA
    Interests
    I am an artist, my daughter is a figure skater, currently skating with Disney On Ice
  • Signature
    Robin

    Neurofeedback - Rebecca's Story

    Robin's Challenge

    Knowledge is power and knowledge shared is power multiplied.
    -- Bob Noyce

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  • Last Activity: 09-01-2018 11:10 AM
  • Join Date: 08-02-2007
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