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stringbean stringbean is offline

Weaving the Community Fabric

Visitor Messages

Showing Visitor Messages 1 to 7 of 7
  1. Steph Marie
    03-01-2009 02:04 AM - permalink
    Steph Marie
    Hi,

    I did a search on musico and found your thread. Nice to meet you guys. This an old thread, oh well. I was just looking for info on other folk who'd had musico, and saw you guys, fresh on google.

    Is rocket man elton jon? After brain surgery(for awhile) that was the only music I could listen to, that didn't hurt. I read on the net somewhere, unsubstantiated, that he had epilepsy.
    Eh. Take care. I couldn't listen to music for years.
  2. stringbean
    11-26-2008 05:48 AM - permalink
    stringbean
    Hello, rocket man, i would not mind at all to add you to my friends list, one problem, i don't know how to do this. I have been on this forum many many times and did'nt even know we had friends lists.
    Yes, those audio hallucianations, when one hits me if the tv or radio is one i have to turn it off i can't remeber what i was hearing but i sure know it was not what they were saying and this happens with family and friends, they say i will start talking sometimes and it is such a bunch of mush they can't understand a word i am saying. This one of the first experience that was happening when i first started having seizures, and i honestly thought i was losing my mind. I didn't even tell anyone for quite a while, thought they would think i was crazy.
    As i said i will have you on my friends list, i just need to figure out how to do so.
  3. Rocket Man
    11-05-2008 06:40 AM - permalink
    Rocket Man
    Hi Stringbean. I'm Rocket Man. I've just found the conversation that you had about audio hallucianation, and your description is the closest to mine. When I'm having a seizure one of the things that impacts the fear is that I can hear one or more voice, even if I'm on my own, and when there's someone with me, I can't distinguish which is the real voice and which is the hallucinatory voice, hence I don't respond to what the real voice tells me to do. The reason why I looked in to this is because I'm currently doing an MA in Contemporary Music, and I'm doing a research dissertation on links between Epilepsy and Music, for example, Musicogenic Epilepsy, and other connections such as Amusia, Musical Agnosia etc. Would you mind joining me to your friends list? Thanks in advance, Rocket Man.
  4. stringbean
    05-11-2008 06:43 AM - permalink
    stringbean
    Thank you for the Birthday Wishes, RobinN, I will put it in my statistics.

    I can really have a problem with my memory these days, I am now really confused, when I got friend requests for two different visitor messages,
    I honestly, don't remember at all anything about visitors
    Can someone explain a bit to me again and this time I will copy it so I can remember and keep intact with all.

    Thank You,
    Tammy
  5. RobinN
    05-10-2008 06:05 PM - permalink
    RobinN
    Hope it has been a good day.
    If you put it in your statistics, then it will pop up on the Main page and alert us, on the day of.
  6. BuckeyeFan
    05-10-2008 10:29 AM - permalink
    BuckeyeFan
    Happy B-Day!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  7. BuckeyeFan
    05-10-2008 10:29 AM - permalink
    BuckeyeFan
    Happy B-Day!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

About Me

  • About stringbean
    Seizure Background
    I have Grandmals, partials and complex partials, I am 48 and have been having uncontrolled seizures for over 25 years now.

    I had left temporal lope recection done in 2004, still having seizures not as many or as often before surgery.
    Treatments
    carbamzipine (sp.) 200 mg. 4 a day, Lamitical, 100mg. 3 a day, Lamiticacl 25mg twice a day, and klonopin (generic for) .05 five a day
    Location
    WV

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  • Last Activity: 11-15-2009 05:24 AM
  • Join Date: 11-12-2007
  • Referrals: 0

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