Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
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tinasmom tinasmom is offline

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  1. CarrieH
    11-14-2011 01:14 PM - permalink
    Thank you so much for sharing the story of your daughter and granddaughter. My seizures started at age 6 as well, but I made it another 25 years before another. I'm sorry for your loss and I too hope they hurry up and find a cure for this. Please keep us posted on your beautiful granddaughter.
  2. RanMan
    12-23-2009 02:26 PM - permalink
    Hi Tina's mom. Has your granddaughter been seizure free since August like you had hoped?
  3. McGill
    08-29-2009 06:22 PM - permalink
    I read your bio & about your DD's unwillingness to follow her Rx regime. Belatedly, please accept my condolences. My mother lost a child in a car accident so I can relate how a parent and mother must feel.
  4. RanMan
    05-30-2009 12:15 AM - permalink
    I read your story in the "About Me" and I can only imagine what it must be like to lose a child but I think it's great that you are raising your grandaughter.
    Are her seizures under control?

  5. tinasmom
    04-15-2009 07:08 AM - permalink
    I am doing ok. My father in law is not doing well at all, he probably won't make it through the week. I have been busy on other sites and check in here often.
  6. hawke86
    04-14-2009 07:24 PM - permalink
    How are you doing? I hope you had a good weekend. I hope you're doing OK. It already feels like summer here. I'll regret it when summer gets here. I'm suppose to avoid the heat cause of some of my medicine. I hope you're having a good week. It's good seeing you again. I hope you have a good and safe night.
  7. ashmstng
    11-26-2008 01:42 AM - permalink

    I hope you have a wonderful Thanksgiving. Take care.
  8. Mom2many
    11-22-2008 09:39 PM - permalink
    I know you pray for us.......thank you because with it I think I would have fallin off the edge of the earth. This stuff is taking a toll....of course some things are good...I have lost 5 more pounds this week!
    Many hugs to ALL of YOU there across the way...~Ryn
  9. Mom2many
    11-11-2008 11:22 PM - permalink
    Hallmark has lost pet cards...its so hard to lose a pet. I am glad she has you to help her through this sad time. I will contact you tomorrow after m
    Mari's tests
  10. Mom2many
    11-11-2008 06:01 PM - permalink
    Been thinking of you today, How are you? How is the family?
    Hope your day was great. chat later tonight....

About Me

  • About tinasmom
    Seizure Background
    My experience with Epilepsy started with my oldest daughter. Epilepsy runs in my ex-husband's family. When Tina was 6 years old, I started to notice seizures. At that time, she was put on Dilatin and Phenobarbital. Then she was put on Depakote. Her seizures were under control until she pretented to take her medication. When we found out that she was not taking her medication, I asked her why and she said that she wanted to be like other kids. I explained to her that she was like other kids and having seizures was nothing to be ashamed of. She started taking her medication again and we did not see any seizures until puberty. Once again her medications were changed. The seizures were under control until she reached high school and she started having breakthrough seizures. As an adult, her seizures came more frequent and worsened. Her neurologist sent her to a psycharist. They found nothing wrong with her. The neurologist continously changed medications and added medications. She finally became seizure free on August 3, 2006 when she died in her sleep from a seizure. My husband and I have adopted her daughter, who now has seizures. My hope is that someday they will come up with a cure for Epilepsy.
    Janesville, WI


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  • Last Activity: 12-01-2014 08:28 PM
  • Join Date: 11-01-2007
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