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travel bug travel bug is offline

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  • About travel bug
    Seizure Background
    Iíve had epilepsy since early in 2007 when a seizure sent me to the ER where I was diagnosed with a brain tumor. The seizure was (as far as I can figure from what Iíve read) simple partial motor onset, secondarily generalized. At first, I was put on Dilantin which didnít work well for me; my levels kept drifting and I felt horrible. After having several more simple partial motors which knocked me to the ground and left me helpless but conscious, I switched to Keppra - 1000mg/day. That worked well until the fall of 2008 when I started to have episodes of a strange short circuit feeling in my head along with phantom burning tire smell. I wasnít sure if they were seizures, but went to my GP just in case. He increased my Keppra to 1500mg/day and sent me for an MRI which showed some new tumor growth; I was then finally scheduled for surgery. (My doctors had been hesitant before due to the tumorís location near the motor cortex.) After surgery, I had frequent simple partial motor seizures, but they were far less severe and steadily became less frequent. I haven't had an actual seizure since the summer of 2009. Yay! However, I still have sensations and various symptoms that could be seizure related, but I'm hesitant to add anymore meds if I can avoid it.
    Update: Started having seizures again in October of 2013. The tumor had started to grow into the sensory strip causing me to have simple partial sensory episodes. My leg felt like it was curling up like a fruit roll-up :P Anyway, I had surgery at UCSF where they did a fantastic job, they were able to remove 90% of the tumor with few additional deficits. No new seizures since then - April 2014 - but I'm still on Keppra because, as my tumor is malignant and will grow back, I'm very likely to have seizures again sooner or later. Keeping my fingers crossed that it will be later rather than sooner.

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  • Last Activity: 03-11-2017 12:07 AM
  • Join Date: 07-06-2010
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