Anybody have this type of Noc Sz?

epileric

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I rarely get nocturnal seizures, when I do it's usually a sign of stress or something being wrong.

Usually they just wake me up in the middle of the night, I mark down the time I had it to keep record & go back to sleep. Recently though (like last night) I'll get them just as I'm almost asleep. I"ll start to drift off then a seizure will start. I'll either open my eyes which will stop it or just focus on where I am & that sometimes stops it. The neurologist has no clue what to do & like many neuros before him says that I have to learn to live with it.

Has anyone else had this type of sz when falling asleep?
 

Meetz1064

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For me,

this is hard to answer, as my t/c's happen at any time during my sleep cycle, and I really don't have a way to stop them. I wish I knew what to tell you...
 

epileric

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Thanks Meetz

I appreciate the thought.

Oddly enough I don't feel too tired but I'm somewhat moody today. I'm also having a bit of trouble focusing and putting my thoughts into words (not uncommon for me, especially when I'm fatigued).
 

Nancy

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When I first started having CP seizures (and had NO idea what was happening) they all happened very soon after I went to sleep. That's they ONLY time they happened ... until they started happening several times the same night.
 

brain

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I've had to live with nocturnal seizures all in my life,
and in a way, "YES", you would have to learn to live
with it if they (Neurologist or Epileptologist) are unable
to deal with it. Much of the time, I do not even realize
I even had one until I wake up in the morning, just like
I did this morning; wounded this time on my right side
on my upper thigh and my elbow area. HOW? I'm 100%
clueless.

I sleep in a very large bed and very careful to sleep in
the middle, in fact, my son who does check on me when
he can - makes sure the pillows are on the side so I do
not bang myself against the wall. And as for the furniture,
they are moved away from the bed, so I'm clueless, I could
have had a CP and wandered about (which has
happened before - and it's not 'nightwalking' or 'sleepwalking').

One of the key signs in knowing I had a seizure or seizures
at night is how I am reacting in the morning, as it were
this morning - all out of sync, totally in disarray and
disorganized, and nearly in a state of confusion. My son
had to stay with me (he had an appointment with his
Doctor today) and made sure I took my meds and did
monitor me for a bit, and lead me to sit, but I wasn't
"all there" which was worrying him. It took hours for
me to get all back to normal (gradual process).

And yes, there have been several times I had been
woken up in middle of the night - and whether it was
during the seizure or after, that I do not know, but
there have been witnesses who have seen it (likewise
when I have had naps as well, it's happened).

Not necessarily "stress related", even the sudden
change of the atmospheric conditions can have an
impact; and this seems to be the case and issue on
my end here - going from HOT to CHILLY so
quickly, as well as barometric conditions, and so much
more can be involved.

So by all means, do keep a note/ledger/journal/dairy,
and if this occurs again, you'll have a record of this to
let your Neurologist / Epileptologist know - and if there's
a pattern, the Doctor would be able to determine it.
 

epileric

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Thanks Brain, it's always re-assuring to know I'm not the only one going through something like this. Actually your seizures sound like they're more severe than what I get.

As for keeping track of them I keep a pad & paper in the headboard so I can mark down the time the seizure woke me before going back to sleep.

E.
 
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I have myoclonic seizures at night. Under stress or my period. They wake me up. A lot of people have them when they are just waking or going to sleep. Mine are in deep sleep. I have the t/c's in my sleep sometimes to. Both make me tired in the morning.Because you really don't get a full nights rest. I take lorazepam for nocturnal seizures.
 
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