Attn MySpace members - help raise epilepsy awareness

Bernard

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MySpace has an Impact Awards program that highlights different issues/causes from time to time. There is an opportunity right now to bring epilepsy to their attention.

If you have a MySpace account, I urge you to post a reply on this Impact Award forum thread telling people why epilepsy awareness is important.
 

brain

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Thanks Bernard, people have
already begun to post now!

Let's hope it continues to grow
and overflow! I'm already receiving
messages from people in myspace.com
already - just the very first post had
fired off positive responses!

Looks like I'm going to be busy now
answering all those messages and questions
and redirecting people all over the place!
*laughing*

YUP - you can guess one of those places
they're being redirected to ...

Can you guess where one of those places is?

:ponder:
 

Bernard

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I hope more people add their :twocents:. It only takes a couple of minutes to post something heartfelt and has the potential to raise awareness among millions of people.
 

tinasmom

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Thank you Bernard for this link. We need to do whatever it takes to take E out of the shadows.
 

brain

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Responses have been positive ... and only 1 weird one so far...

I'm pleased with the positive response
of people posting in Myspace Impact
thread! I've been receiving messages
from people who didn't even know there
were people with Epilepsy on myspace;
and then I'm receiving messages from
people who have friends, co-workers,
neighbors - or their child's school that
he/she goes to has a "kid who's epileptic"
in their classroom and they're full of
QUESTIONS!

Some questions they have asked will just
SHOW you how much of the LACK of
AWARENESS, KNOWLEDGE, & INSIGHT
on EPILEPSY ABOUNDS ....

I'm going to quote a few:

#1
How far should my son be seated away from the girl who is epileptic? And if she has those spells is my son going to get it too? We are seriously considering having our son moved to a private school if they are going to allow epileptic people in public schools now!

{Took the time to explain everything to her, but she flatly refused to visit any Epilepsy websites because SHE was afraid she would "catch it" (????). Now that one is a new one to me, she can visit my Resource Page, and send me a message, however, once she learned a lot and obtained information, she was relieved, but still refuses to visit any Epilepsy websites for the fears of catching it? Offered her the 800 number to EFA - and she was fearful that it could be transmitted via the telephone lines. (Now I feel sorry for the child! I could only imagine what it would be like if Epilepsy was shown on television? What is she going to do? Grab a can of Lysol spray and spray the HDTV? *smirks*)}


#2
hi! i wanna u 2 kno that I works 4 a Co. that has dum peeps. My boss has epillepsey and sumtimes he do funny things but he a grate guy! i gets dissed off at my Co. employyees cuz they r stupid as hell. make fun of boss like shiit when he gets those epillepsey ticks. he not gets them much. i wanna know how n the hell can i get dem shiitheads 2 chill out? peace out!

{He deserves a promotion! I don't care about his spelling though, but at least I directed him to the Epilepsy Foundation's website where he can obtain info and learn once I learned what kind of seizures his boss had. And by the way, he signed up on the petition too.}


#3
Good day Ma'am! Would you be so kind with your generous assistance in helping us here? My wife is right beside me and is excessively worried due to the recent airing of the health news we both heard on television. The doctor spoke of those having seizures as a child which can go away and then return back later in life as early as 40 to 50 years old. Is there any truth as far as what was said on television? I know you cannot believe everything that you hear on television these days, but can you assist us with that? My wife used to have seizures when she was little and had to take feno-something, she cannot remember. She was told she had jackson and petty mals. We have tried to do some research on jackson and petty mals but all we could come up are with people's names of Jackson and things revolving around Petty Mals in Police and Law references or Petty Mall? My wife is jerking at nights and sometimes during the day she appears to be glaring out blankly out into space then looses what she was doing or then begins to jerk. We did discuss this with her doctor and he just informed us that it was nothing? We are both concerned and neither one of us are happy with this new doctor that has replaced our long time doctor who has retired. What is your opinion on this please Ma'am? Any advice would be appreciated! Thank you very much! Sincerely, XXXXXXXX (name withdrawn)

{Provided him the confirmation that the Physician on television was indeed correct, and provided them the links to the EFA's site on several places, as well as Senior Citizens. Gave advisories that they need to seek another Primary Care Physician and for her to seek a Neurologist or contact the Hospital to obtain one as soon as possible, and did inform them that the old terminology of "jackson" was Jacksonian Seizures and that Petty Mal is Petit Mal which is known now as Absence Seizures.}

FOLLOW UP RESPONSE FROM ABOVE:

Thank you so much Sharon! We did call the Epilepsy Foundation and there is a Epilepsy Foundation Chapter right here nearby us in which we did lay hold of them right away and they were so nice to us, all of them! They were even able to provide my wife a E-something Specialist and he had an opening for her Friday morning and they were absolutely lovely folks, so wonderful to help us all out! We cannot express our gratitude to you Sharon and to the Epilepsy Foundation! Thank you! Thank you! Thank you! XXXXXXXX (name withdrawn)

PS: Dr. XXXXXXX (name withdrawn) had my wife on EGG and she is having seizures and he started her on Triloptiol I believe that's how it's spelled, and had informed us everything that this medication will have to be titrated slowly and he will check her again in one month and run another EGG to see what her EGG looks from there and if any more medication is needed he will add more if necessary.

{I love that! EGG! I cracked up with tears in my eyes reading that Post Script - EEG - but EGG? But sure glad his wife is in good hands!}



Below is the most astounding question I've ever received of all times!


#4
By mistake at work, I accidentally drank out of a cup from my fellow co-worker who has epielpsy, what's the odds now that I'm gonna get it?
I've read everything on the web, and I cannot find any proof that epielepsy is not congatious! PROVE IT!


{I didn't answer it - I checked the profile, newbie, nothing there, poor spelling, hit the delete button!}
:?


What about you Bernard? Have you received anything
on Myspace.com? Has anyone contacted you?
 

Bernard

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I've had a couple of friend requests, but that's it so far. You should post those responses in the Impact thread.
 
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Brain's a blast!!

:rock::rock::brain::rock::rock:

:roflmao::clap::roflmao:

:banana: (I tink I'm gonna "oops")

:roflmao::roflmao::roflmao::roflmao:


10 KUDOS to the :brain:


*************
be blessed
:e:
GL-ziggidypoo
*************
 

brain

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I've had a couple of friend requests, but that's it so far. You should post those responses in the Impact thread.
What I can do is post some response messages
without violating the TOS (Terms of Service) on
the thread. Will have to think of a response reply
that won't be reportable.

I will think of something...

More people have posted on the thread.

I will have to put my brains in gear to think....
 
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Sorry!

:rock::rock::brain::rock::rock:

:roflmao::clap::roflmao:

:banana: (I tink I'm gonna "oops")

:roflmao::roflmao::roflmao::roflmao:


10 KUDOS to the :brain:


*************
be blessed
:e:
GL-ziggidypoo
*************


Being newly awake this morning, I can see how this is a serious thread and my post was inappropriate, sorry. (although I do think the world of BERNARD and BRAIN)
 
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I do have a question though?

How can we as individuals contact or whatever to make MEDICAL PERSONNEL more aware of the TYPES of seizures and what a POST-ICTAL time can LOOK like and such?
 

brain

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Great Question!

How can we as individuals contact or whatever to make MEDICAL PERSONNEL more aware of the TYPES of seizures and what a POST-ICTAL time can LOOK like and such?
Advocacy and Awareness and Education!

Epilepsy Foundation has materials available
for such - for Medical, School, and even Law
Enforcement Personnel - in their Store!

Even giving simple items such as something
they can use to get them to generate interest,
like giving away small items - after all - people
LOVE free stuff! I've been giving away Epilepsy
Foundation bands, and the moment I get them;
they're GONE! (They're HOT STUFF!)

I'm hoping CWE would come up with Bookmarks,
and those would be HOT STUFF! I'd buy those in
a flash - and give them away, so people would
hit up on the web - and read up on this stuff!


:tup:


PS: No worries on the typos - we've all experienced
"doo-doo's" from time to time! We understand you
100%! ((((((( hugs )))))))
:D
 
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