RanMan
Too Much Experience with Epilepsy
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Bad Dilantin side effects due to "Old School thinking"neurologist set in his ways
I had a grandmal sezure back in 1979.
To make a long story sort, after several testers, my neurologist put me on DILANTIN and phenobarb and have been on the same thing ever since but over about the last 10 yrs or so, the side effects have been "killing me".
My neurologist refuses to address these issues and says "it's a side effect of the Dilantin and I had to "live with it",
He is set in his ways and refuses to change my medication because he said that Dilantin has been around the longest as an antiepileptict drug and is the best one out there .
He told me that if I were to change meds, I could have more seizures and more frequent and more severe.
He had me TOTALY believing this.
Meanwhile, over the years, I've heard from so many Doctors, Lab techs, other ppl on this board, etc. That there are so many other AED's out there with little or no side effects and good seizure control.
My question is, Does anybody out there know of any AED that can control seizures AND REVERSE MY CURRENT damage that has been caused by the long term use of Dilantin?
My current neurologist has been retired for about a year and I don't see my NEW neurologist til November and I'd like to have something to suggest to him.
I had a grandmal sezure back in 1979.
To make a long story sort, after several testers, my neurologist put me on DILANTIN and phenobarb and have been on the same thing ever since but over about the last 10 yrs or so, the side effects have been "killing me".
My neurologist refuses to address these issues and says "it's a side effect of the Dilantin and I had to "live with it",
He is set in his ways and refuses to change my medication because he said that Dilantin has been around the longest as an antiepileptict drug and is the best one out there .
He told me that if I were to change meds, I could have more seizures and more frequent and more severe.
He had me TOTALY believing this.
Meanwhile, over the years, I've heard from so many Doctors, Lab techs, other ppl on this board, etc. That there are so many other AED's out there with little or no side effects and good seizure control.
My question is, Does anybody out there know of any AED that can control seizures AND REVERSE MY CURRENT damage that has been caused by the long term use of Dilantin?
My current neurologist has been retired for about a year and I don't see my NEW neurologist til November and I'd like to have something to suggest to him.