My 21month old has what his dr's thinks are events while sleeping. He is on Tegretol and his Nureo said he really should be "sleeping" better and is unsure why this is happening. As his lesian is deep in his brain when have been told a sleep study (eeg) may not pick up what is going on. We hear him cry out lots overnight and when he does this his body is either stretched back, one or both hand suddenly go out and lock, sometimes a leg or both legs, sometimes it he pulls his head right back. We are not sure if they are events or strange spasms. He is also having absence events overnight we have been able to catch some of these of video. In the mornings and after his afternoon nap he has trouble with his legs. Often he is really unsteady, sometimes they cross over in front of him when he is trying to walk and other times like today his legs were unable to realx and his feet were pointing down. Some days he's very NQR his nureo calls it like waking in a fog (he thinks its caused by events while sleeping) and it takes a bit longer for the "fog" to clear.)
Does anyone who's child/or themselves who have night/sleep events experience this?
Thankfully he usually comes "good" within 30min and can walk, sometimes a little stiff but then gradually he "free's up"
We are off to his Paed tomorrow for his developmental check, has one every 2 months at the moment so will discuss it with her as we are concerned re the amount of times this is happening.
Thanks for reading
Donna
Does anyone who's child/or themselves who have night/sleep events experience this?
Thankfully he usually comes "good" within 30min and can walk, sometimes a little stiff but then gradually he "free's up"
We are off to his Paed tomorrow for his developmental check, has one every 2 months at the moment so will discuss it with her as we are concerned re the amount of times this is happening.
Thanks for reading
Donna