do any parents here have kids with tuberose sclerosis complex?
- Thread starter stacey
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Stacey --
I found one post mentioning tuberous sclerosis in the CWE archives:
http://www.coping-with-epilepsy.com/forums/f20/hi-new-here-14519/
You might find more folks who are familiar with ts at this site: https://www.inspire.com/groups/tuberous-sclerosis-alliance
I found one post mentioning tuberous sclerosis in the CWE archives:
http://www.coping-with-epilepsy.com/forums/f20/hi-new-here-14519/
You might find more folks who are familiar with ts at this site: https://www.inspire.com/groups/tuberous-sclerosis-alliance
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I do know several parents who have a kid with epilpesy caused bij TSC on my Dutch parental forum and one of my collegues has a 14-year old son who had West syndrome as a baby caused bij TSC. His seizures are well controled with valporate and lamotrigine but he does have mental retardation.
