Do hospitals accommodations making appointments?

Matthew74

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Do epilepsy centers offer assistance with making appointments for people with disabilities?

Someone I follow on YouTube (How to ADHD) said that if you ask sometimes organizations will offer extra help with filling out papers and that sort of thing. I'm such a wreck recently that I can barely take care of myself.

I need more comprehensive care. Ordinarily I can manage that stuff, but I'm not functioning very well. My present epileptologist and hospital aren't cutting it - I've asked several times. There are some epilepsy centers nearby in Ft. Lauderdale and Miami. I need a psychological evaluation, and something like a case worker. My hospital doesn't seem to offer that.
 

Janus

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Oh, shoot. That sucks.
I have found that asking for help gets so much results. I now have a caregiver with me who organizes with doctors: dates etc. I go to a Large, state funded, hospital in Washington state. Social workers, or, often the secretary or nurse with help with all the forms.. I have a TBI also. So irreparable confusion can prevent further delay. It's a huge, world class medical facility with an advanced epilepsy clinic. ( My caregiver/girlfriend) drives is an hour to the clinic. Want to know what sounds selfish?
Everytime I go to Seattle, to the clinic, which is right in town, I miss Seattle so much. Nostalgic and homesick to go there and wish I could stay.


Regardless, I had no helpers for thirty years. I have become adept at asking for help in hospitals./ Clinics, etc.
 

Porkette

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My advice to you is to check out another Epilepsy Center. You will probably have to have your Epileptologist or family Dr. refer
you to go to a different place. I had to do this when I wasn't treated well at one Epilepsy Center and one of the Drs. messed things up
so I went to a different place and things were much better. Just be sure that your Dr. transfers all your medical records to where you
want to go. I wish you the best of luck and May God Bless You!

Sue
 

Matthew74

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I called an Epilepsy Center near here. I have an appointment next month. My experience on the phone wasn't exactly as awesome as the Mayo Clinic was, but I'm spoiled. We'll see how things go. I think they will go well, but if they don't, there's another one about the same distance away.

I don't know if it's because I'm getting older, or I'm on more meds, or it's having a bad back, or the whole Covid thing, or what, but I'm starting to feel like I need a lot of help. I'm probably not that different, but I feel a lot different. Maybe part of it is being aware of just how messed up I am. When I was younger I mostly thought of myself as normal. I was always messing up and failing at things, but I mostly blamed myself. I also didn't have to try to pay rent. Now that I don't feel as well, and don't have as much resiliency. I'm more aware that things are actually more difficult for me, so I get overwhelmed more easily.
 
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