Epilepsy video/documentary on PBS

[Frink]

I did not see this posted anywhere else.

This is a pretty good, talks about seizures, deep brain stimulation, CBD oil/ Epidiolex clinical studies.

http://www.pbs.org/program/seized-inside-mystery-epilepsy/

https://www.youtube.com/watch?v=J2CSvW5Fhi4

 

[Nakamova]

Thanks for the links Frink, should be interesting to check out. Have you found any issues with the information the program presents?

 

[Kgartner]

I thought that it was a very good documentary - it covers both the science of epilepsy and seizures, and also gives a flavor of what it's like to live with it. I have recommended it to several people already.

 

[Frink]

Thanks for the links Frink, should be interesting to check out. Have you found any issues with the information the program presents?

I thought it was good, no issues for me. I am a fan of Dr Orrin Devinsky, his book "a guide to understanding and living with epilepsy" was one of the first epilepsy books I read.
https://www.amazon.com/Guide-Unders...83220-8866811?ie=UTF8&*Version*=1&*entries*=0

 

[Porkette]

Hi Frink,
Thank you for sharing this video, I found it very interesting. I was going to get a neuropace but my surgeon told me it wouldn't work because I had to many areas in my brain triggering seizures. Thanks again and May God Bless You!

Sue

 

[resaebiunne]

Thanks for the link. Personally I find this hard to watch. It just makes me uncomfortable. I'm just glad my seizures are relatively minor compared to what they could be.

 

[Kgartner]

Thanks for the link. Personally I find this hard to watch. It just makes me uncomfortable. I'm just glad my seizures are relatively minor compared to what they could be.

I usually can't watch either - it activates my PTSD from seeing my daughter's seizures. But this was so well done that it overcame that reaction for me.

 

[KatymomtoA]

I watched this a few weeks ago. I found it worth the watch and informative, even coming from a caregivers perspective.