Foods/Substances

edepew151

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Hi everyone! I've had epilepsy since I was 13, and I'm now 19. You'd think I'd have it under control by now, but I don't. New triggers just keep popping up (I'm up to 9). The only food related one I have is caffine, but I want to know what other foods/substances set you guys off? I'm going to be as proactive as possible and go ahead and cut out as much of it as I can. Thanks!
 

Nakamova

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There's some good info in this thread to get you started: http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/

Food-related triggers can vary a lot from person to person, so what's an issue for me may not be an issue for you. For me, aspartame/msg can be problematic, and having low blood sugar is a triggering as well. I'm not particularly bothered by alcohol or caffeine in moderation, but for others they are absolute no-nos.

In most cases, a basic well-balanced diet (grains/greens/healthy oils/etc), is a good start. Some folks have a gluten sensitivity or intolerance, and have found that a gluten-free diet helps with seizure control. Others have used the Modified Atkins Diet with success. Before starting a major dietary change, it's a good idea to check with your doctor.
 

edepew151

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I hear aspartame is a fairly common one. What kinds of food is aspartame in?
 

Nakamova

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Aspartame is the same as Nutrasweet -- so it's found in a lot of diet sodas and other sugar-free products.
 

gregm

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I am 62 and have had epilepsy since age 12. A couple of years ago I lost weight on a diet that had no simple carbohydrates such as those found in bread. I have had testing done and have 2 genetic markers that show a predisposition to gluten intolerance.
I have be almost seizure free for 2 years now. It took me 6 months to purge the gluten from my body and go through the learning process of how little gluten it takes to cause a problem in people that are gluten sensitive people.
I am now a part of the Gluten Intolerant Group and work with other individuals that are trying to eliminate gluten from.
I would like to hear from other that have uncontrolled seizures without a clear diagnosis.

Gregm
 

BillK

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I'm pretty sure beer doesn't work for me and aspartame as well. I've been trying a low glycemic diet (somewhat) and was having success until recently. I was looking last night and my main weakness is bread, even organic whole wheat sprouted, etc. For some reason tortillas are supposed to be better. That said, I think stress plays a major role (for me, at least) in setting off seizures and I had the worst one ever a few weeks ago after moving for the 4th time in about six months in a house with a smoker.
 

RobinN

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My daughter has reactive hypoglycemia, which drops her blood sugar rapidly. I believe it is a combination of events, foods, vitamin and mineral requirements for energy levels etc. Thankfully her seizure threshold is higher these days and she hasn't had a seizure in 10+ months. She remains med free.

Great news Greg - My daughter also attempts to keep gluten out of her system, as she does with cow dairy as well. Sensitive systems are just pushed over the threshold.
 

hootie

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Too many carbs and anything made with potato are triggers for my son.
 

Malla

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Yes yes, indeed gluten, caffeine, nicotine, aspartame, sugar (in exess),
 
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