going OFF keppra in June (BRE)

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brenda-sw

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Hi,
My now 5.5 yr old has been on Keppra for almost two years (July 10). Treating BRE. She is on 2 ml at night only. Has been doing really well. We have been seizure free for two years come June. We have been dealing w/ 'sparkly' limbs since before the seizures started. we think they are pins and needles like feeling. Over the past two years the sparklys have decreased significantly BUT we still see them every few months. Neuro has always said these were probably tiny seizures, deep in brain- but they never were picked up on EEG's.

I'm so nervous about going off the meds. We were NEVER pro-med at all, but after two seizures in a 4 week period we felt it was the right decision for us. We have seen very minor side effects from medicine, basically it did exactly what is was supposed to do.

Anyone else w/ BRE gone off meds and what was it like, any behavior or sleep issues coming off the meds? Did the seizures stay away?

thx,
Brenda
 
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