Grateful despite a late tough october

[ehinOWHEN]

Hello everyone,

It’s been a while since I’ve been active here, and I really miss connecting with all of you. The past few weeks have been incredibly rough health-wise, probably the hardest I’ve faced since my journey with epilepsy began. Starting on Sunday, October 20th, I went through an intense episode that lasted until Monday, October 28th, with two particularly severe seizures that left me unconscious on the 20th while I was out getting food.

Throughout this time, I felt completely drained—irritable, unfocused, and fighting to keep a grip on any sense of normalcy. There were moments where I felt like I was on the edge of losing myself entirely. I tried coming here to vent and seek some support, but between server issues and the time differences, it just didn’t work out. It’s a real struggle going through all this alone, but I’m incredibly grateful for those who reached out and checked in on me. Knowing there are people who care makes a huge difference.

I’m still getting myself back hopefully I can share more

—Owhen

 

[ehinOWHEN]

Sigh it was a pretty scary period for me honestly.
At times it felt as if I was going insane. I couldn’t put thoughts together properly. Sleeping was an issue. I’m just grateful to be here still

 

[Heavy Kevy]

So sorry to hear. Hang in there, hopefully you get some peaceful sleep. It can make a big difference.

 

[ehinOWHEN]

So sorry to hear. Hang in there, hopefully you get some peaceful sleep. It can make a big difference.

Hi Kevy

Thanks so much for your kind words and support
it really means a lot. I’ve noticed that even just a little bit of restful sleep makes a huge difference, so I’m holding onto that hope. It’s just past 4am over here. I woke up to pee. But I bet I wouldn’t be able to sleep again haha. The 4 a.m. wake-ups have definitely become routine at this point seems like my body has a schedule of its own now! But I’m trying to make the best of it, one night at a time. Thank you so much once again

— Owhen

 

[gina19]

Hi Kevy

Thanks so much for your kind words and support
it really means a lot. I’ve noticed that even just a little bit of restful sleep makes a huge difference, so I’m holding onto that hope. It’s just past 4am over here. I woke up to pee. But I bet I wouldn’t be able to sleep again haha. The 4 a.m. wake-ups have definitely become routine at this point seems like my body has a schedule of its own now! But I’m trying to make the best of it, one night at a time. Thank you so much once again

— Owhen
I've been there and got the teashirt (early wake ups I mean)

Also there is so much truth in being able to wake up and not falling back asleep.

I am sorry you had a rough time of it.

If it's any comsolation, my halloween didn't exactly go to plan. At around 12:00 on halloween afternoon I had a rather big seizure which gave me a headache until lunchtime on friday morning- no candy, no dressing up, no scary films, nothing like that

But I am hoping to celebrate it late. I want to do something this weekend or something

 

[ehinOWHEN]

Hey Gina!
Sorry to hear Halloween didn’t go as planned for you. A big seizure on a day meant for fun is just the worst. I’m glad to hear you’re planning a late celebration, though hopefully you feel better…

And I noticed you haven’t been around here as much either. It really does feel like a struggle sometimes to stay connected when health keeps throwing us off. Hopefully, this weekend will bring us both a chance to reset a little. Thanks for sharing
I feel a bit less alone knowing someone else gets it.”