Behindblueeyes
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Hey everyone,
This is the first online support site I have joined for my epilepsy and I've had a diagnosis for over ten years! Talk about behind in the times LOL, I stumbled upon some of the forums through Google and though this is a great way to talk to others with similar life struggles. I suppose I'll start by saying I have Juvenile myoclonic epilepsy. I was diagnosed when I was 16 after a rather large grand-Mal in the hospital after being given a strong dose of morphine for a kidney infection. I started experiencing the "twitching" symptoms when I was 13 or so, but no one really believed me until I had a dramatic episode.. I have been put on valproic acid (didn't work), dilanton (took me off of it as soon as I found out it can cause facial hair!) lamotrigine mixed with clobazam, then switched to Keppra.. I have been taking this (1500mg/twice daily) for quite sometime.. (5+ years?) and sometimes I take clobazam if I'm going through a particularly stressful period of life (I'm currently taking it as my hormone levels were crazy after I had my daughter a year ago). I survived two seizures while driving, college, university, a drinking problem, and I am a single mom who lives alone and delivered a perfectly healthy baby (with the help of LOTS of folic acid
I thought that if I had known about sites like this when I was younger it would have made my life easier and maybe could have helped me avoid counseling sessions and panic attacks to a lesser extent anyways. I hope to contribute encouraging advice and support to others who are struggling with being a person who shakes 
And maybe I'll even have a question or two from time to time.. Hope to hear from some of you soon!
Cheers!
This is the first online support site I have joined for my epilepsy and I've had a diagnosis for over ten years! Talk about behind in the times LOL, I stumbled upon some of the forums through Google and though this is a great way to talk to others with similar life struggles. I suppose I'll start by saying I have Juvenile myoclonic epilepsy. I was diagnosed when I was 16 after a rather large grand-Mal in the hospital after being given a strong dose of morphine for a kidney infection. I started experiencing the "twitching" symptoms when I was 13 or so, but no one really believed me until I had a dramatic episode.. I have been put on valproic acid (didn't work), dilanton (took me off of it as soon as I found out it can cause facial hair!) lamotrigine mixed with clobazam, then switched to Keppra.. I have been taking this (1500mg/twice daily) for quite sometime.. (5+ years?) and sometimes I take clobazam if I'm going through a particularly stressful period of life (I'm currently taking it as my hormone levels were crazy after I had my daughter a year ago). I survived two seizures while driving, college, university, a drinking problem, and I am a single mom who lives alone and delivered a perfectly healthy baby (with the help of LOTS of folic acid
I thought that if I had known about sites like this when I was younger it would have made my life easier and maybe could have helped me avoid counseling sessions and panic attacks to a lesser extent anyways. I hope to contribute encouraging advice and support to others who are struggling with being a person who shakes And maybe I'll even have a question or two from time to time.. Hope to hear from some of you soon!Cheers!
