Hi - My husband had a fall in June 2011, suffered a TBI, had brain surgery, yada, yada, yada. Put on Dilantin as standard procedure, but never at a theraputic blood level. May 2012 had gran mal seizure. 10 days in hospital for 24/7 eeg. One seizure induced while there. Fun time. Increased Dilantin and added Lamictal XR. No seizures since. However.....lately more tired, unfocused, foggy (his words), looks like death warmed over. Neuro tried him on Novigal. Husband said didn't work much if any (and at $450 a month it better work well). Now, he is just getting worse. Need to bounce ideas off others, please.
Husband has TBI caused Epilepsy
- Thread starter TexasLady
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- brain injury dilantin novigal
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Sandie
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It must be very stressful for you to have to cope with this. My only suggestion would be to get a second opinion by another neurologist which can be easier said than done unfortunately. I hope you get some answers soon.I hope there are brighter days ahead for you, my friend.
Squirreljo
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Hi TexasLady, I'm new here. My partner has temporal lobe epilepsy also from TBI. He is on Keppra and (oops I have forgotten the name of the other med). The meds also seem to affect his speech & memory and we are very frustrated because he has been on so many different types of meds now, and if anything it has only made things worse for him. I am currently researching as much as possible about complimentary therapies/dietary changes etc. I have certainly noticed that tiredness and stress really affects the seizure frequency. I am very keen for him to try biofeedback/neurofeedback as a relaxation technique. Feel free to bounce ideas my way. Alos, I have a document in hich I paste any interesting research/findings that I find along the way which I am happy to share. Best of luck to you both x