Hi everyone. What a relief to find a forum like this. My 13 year old daughter, Robyn, has just been diagnosed with elilepsy. Is came out of the blue. A healthy, gifted child with absolutely everything going her way suddenly has a grand mal seizure which lasted more than 5 minutes. After the seizure she was unconsious for about another 5 minutes. The usual story...may questions...more tests.....no answers and lots and lots of fear. Just when we thought it was a once off event (afterall "everyone is entitled to one seizure"),two months later she has another seizure (not quite as long as the first one, but as devastating emotionally). My happy, intelligent child (now on Epilim) is quiet and depressed, always tired and battling to consentrate. We went to see a dietician today who specialises in children with epilepsy and the ketogenic diet. She has put Robyn on a low GI diet (Adopted for epilepsy). Except for the increased intake of fat...it is basically the same as our normal diet.... Can it make such a huge difference?
Can anyone tell me whether the tiredness and "Spaced-outness" with the Epilim get better? Does it take a while to get used to it or is this what she will have to deal with from hereon? Any other better alternatives?
We have no family history of epilepsy and I shamefully have to admit that we do not know too much... this forum contains a lot of information- thank you for that, but please bear with me if I ask stupid questions....
Can anyone tell me whether the tiredness and "Spaced-outness" with the Epilim get better? Does it take a while to get used to it or is this what she will have to deal with from hereon? Any other better alternatives?
We have no family history of epilepsy and I shamefully have to admit that we do not know too much... this forum contains a lot of information- thank you for that, but please bear with me if I ask stupid questions....