Hello,
Hi, my 4 ½ year old son was recently diagnosed with temporal lobe epilepsy with some rolandic features. It has taken us 2 and a half years to get him diagnosed, as initially they believed some of his symptoms were simple ADHD and other symptoms they ignored completely (acting as if I was imagining them or over reacting). Recently, his seizures progressed from staring spells to complex partial seizures (in his face) accompanied by Todd’s paralysis. Finally he was given a CT scan and an EEG and diagnosed. Now we seem to be on a medication roller coaster. To complicate things we are a military family stationed overseas. The neurologist only visits every four to six months and our regular doctors don’t seem to have a lot of specific epilepsy knowledge. I feel stressed and worried for my son. I feel like I need any advice that people are willing to give me, because I don’t even know what questions I should be asking at this point.
Thanks
Hi, my 4 ½ year old son was recently diagnosed with temporal lobe epilepsy with some rolandic features. It has taken us 2 and a half years to get him diagnosed, as initially they believed some of his symptoms were simple ADHD and other symptoms they ignored completely (acting as if I was imagining them or over reacting). Recently, his seizures progressed from staring spells to complex partial seizures (in his face) accompanied by Todd’s paralysis. Finally he was given a CT scan and an EEG and diagnosed. Now we seem to be on a medication roller coaster. To complicate things we are a military family stationed overseas. The neurologist only visits every four to six months and our regular doctors don’t seem to have a lot of specific epilepsy knowledge. I feel stressed and worried for my son. I feel like I need any advice that people are willing to give me, because I don’t even know what questions I should be asking at this point.
Thanks