sparkzombie
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My name is Kelly and I'm 22 years old. According to my parents, when I was a baby, I would shake. Like a really bad shiver and then I'd stop and act like normal. As I got older, I began to wake up in odd hours of the night completely distressed, screaming for my mother because something was happening to me and I couldn't describe it. My mother is a migraine sufferer and she immediately asked me questions like "is the room spinning, do you feel sick, does your head hurt?" and I would tell her yes because I couldn't describe what I was feeling. I was diagnosed with migraines at six years old and put on medication after medication (amitriptyline, imitrex, needles, etc.), all of which made me worse to the point I was vomiting every 20 minutes for the next twelve hours or so. When I was about seven or eight, my mother noticed a pattern. I got sick in my sleep every 12 weeks. To the day. Almost like a menstrual cycle. The first day I got sick, she would mark it in the calendar and then count 12 weeks ahead from the first day and sure enough, I would get sick when she predicted. It wasn't long before we began to question whether or not I actually had migraines. Doctors didn't want to listen. We ceased all medication because it only made me worse. I have had two EEGs and three MRIs but none within the last ten years.
I still get sick to this day. Always between 12 and 13 weeks now. I can actually request off from work months in advance and tell my boss it's because I'll be sick then. Here's what happens to me when I sleep..
I usually have a bad or very vivid dream immediately beforehand. Extreme nausea, knots in my stomach. Then I am jerked awake. It feels like my head kind of shuts down. I can't open my eyes, and I clench most muscles in my upper body. I do not twitch. It's hard to talk and my eyes move while they are closed, I can feel it. If I wasn't laying down already, I would probably fall. Then I'm okay for a bit. It lasts for about ten to fifteen seconds and then it's gone. If I go back to sleep, I will get it again in a few minutes. Sometimes, if I can manage to stay awake (I'm extremely tired) it will go away for that day and I will be able to function fine until that night when I wake up with them again. I will wake up with them for two or three days, sometimes I'm fine if I can manage to stay awake but other days I am in bed sick all day. Vomiting, can't hold anything down, can't even open my eyes because the movement makes me sick. It takes about about a week to a little over a week to fully recover. Once I am finished with waking up with them, there are three to five days where I am extremely dizzy and nauseous and will even somtimes get one while awake and walking but it's nowhere near as strong as when I was sleeping. The ones when I'm awake don't have to power to knock me down, just lean on something. Things that might be triggers are that I do see white spots moving almost like a sparkler or moving stars a few days or even up to a couple weeks beforehand. My ears will also leak wax (gross, I know) for about a month beforehand. I am also extremely sensitive to light before I get them and for about a week afterward.
Please tell me what you think. This post will be cross posted under different titles to get the maximun amount of opinions. Thank you.
I still get sick to this day. Always between 12 and 13 weeks now. I can actually request off from work months in advance and tell my boss it's because I'll be sick then. Here's what happens to me when I sleep..
I usually have a bad or very vivid dream immediately beforehand. Extreme nausea, knots in my stomach. Then I am jerked awake. It feels like my head kind of shuts down. I can't open my eyes, and I clench most muscles in my upper body. I do not twitch. It's hard to talk and my eyes move while they are closed, I can feel it. If I wasn't laying down already, I would probably fall. Then I'm okay for a bit. It lasts for about ten to fifteen seconds and then it's gone. If I go back to sleep, I will get it again in a few minutes. Sometimes, if I can manage to stay awake (I'm extremely tired) it will go away for that day and I will be able to function fine until that night when I wake up with them again. I will wake up with them for two or three days, sometimes I'm fine if I can manage to stay awake but other days I am in bed sick all day. Vomiting, can't hold anything down, can't even open my eyes because the movement makes me sick. It takes about about a week to a little over a week to fully recover. Once I am finished with waking up with them, there are three to five days where I am extremely dizzy and nauseous and will even somtimes get one while awake and walking but it's nowhere near as strong as when I was sleeping. The ones when I'm awake don't have to power to knock me down, just lean on something. Things that might be triggers are that I do see white spots moving almost like a sparkler or moving stars a few days or even up to a couple weeks beforehand. My ears will also leak wax (gross, I know) for about a month beforehand. I am also extremely sensitive to light before I get them and for about a week afterward.
Please tell me what you think. This post will be cross posted under different titles to get the maximun amount of opinions. Thank you.
