SassySarah
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So without writing a book - Hello! A year ago, two days after multiple nerve block for a dysfunctional sacroiliac joint as well as numerous degenerative discs in the lumbar region I began having severe tonic clonic cluster seizures while maintaining conciousness the majority of the time. After 4.5 months in a leading hospital they reduced the events from multiple times per day to on average every 3 days. I have taken klonopin and robaxin since as well as IM ativan. Once injected the seizure lasts 45-60 minutes. Depakote and Topamax were unsuccessful. I have been accused of psycho-somatic disorder and a seizure was allowed to continue 8 hrs. During the hospitalization I started to go into heart failure multiple times resulting in codes called because of the stress of the seizures on my body and heart. I have had a few absence seizures. Since beginning tegretol I have reduced seizures to about once a month however still struggling with auras excessively. I have been unable to drive or work. Has anyone had similar experience? Oh EEG is normal and MRI only shows an inactive pituitary adenoma. I feel so alone and like such a freak! Anyone similar?