nothing left to try w/ur refractory

Belinda5000

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Hello everyone,
I've tried everything brain surgery,VNS,I'm allergic 6 meds a lot of them just don't work for me.I'm med resistant to one entire class of drugs Tegretol.
I can take the original Tegretol but nothing else in the family.

What do u do when you've tried everything? I'm on mt 22nd AED.
I couldn't take new one Potiga because of my heart.

any suggestions?:twocents:


Belinda
 

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Hello everyone,
I've tried everything brain surgery,VNS,I'm allergic 6 meds a lot of them just don't work for me.I'm med resistant to one entire class of drugs Tegretol.
I can take the original Tegretol but nothing else in the family.

What do u do when you've tried everything? I'm on mt 22nd AED.
I couldn't take new one Potiga because of my heart.

any suggestions?
You come here and ask for suggestions? You've got to be kidding, right?
I, too, had a failed brain surgery, I've only tried 11 meds, and am now on my 3rd VNS battery. I have refractory E and the only thing I can do is keep going back to my epileptologist and ask what is the latest thing on the market that I could try. Maybe, just maybe, this one would work.
 

Belinda5000

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You come here and ask for suggestions? You've got to be kidding, right?
I, too, had a failed brain surgery, I've only tried 11 meds, and am now on my 3rd VNS battery. I have refractory E and the only thing I can do is keep going back to my epileptologist and ask what is the latest thing on the market that I could try. Maybe, just maybe, this one would work.
I HAD the VNS battery replaced 3 times.My neuro has me on some old drugs.
Eventually my seizures will start back up they always do.
I'm tired of busting my head open.
 

Meetz1064

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And

what about trying one of the diets, like the GARD, or Modified Atkins???
 
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