Playing with fire....by being unmedicated.
My seizures have never been well controlled.
So in May I stopped taking my topirimate and a year ago I stopped taking antidepressants.
I am more moody but life is no longer on mute.
My seizures have increased a little but I am used to them after 10 years with them.
Because of my combined diagnoses and the Dr.s favouring the PNES aspect of my seizures I am thinking screw it.
If they ever progress to tonic clonics or loss of consciousness then maybe I will get proper treatment.
And have Drs look me in the eye again because my goodness stigma is alive and very well in the medical field.
That is what has always stung the most. And I have seen 8 neurologists over the years.
I do choose life. And my seizures do not define me.
I am a mother. Employed. A wife. A daughter, sister, friend... I haven't driven in 6 years because no matter what kind of seizures you have they can take away
your license. I understand. I understand it all.
I don't even have a neurologist or epileptologist anymore.
I leave it all to fate now.
Foolishness?
I have changed. I am no longer the person I once was.
But....time goes on.
We survive.
I am thankful for much.
My seizures have never been well controlled.
So in May I stopped taking my topirimate and a year ago I stopped taking antidepressants.
I am more moody but life is no longer on mute.
My seizures have increased a little but I am used to them after 10 years with them.
Because of my combined diagnoses and the Dr.s favouring the PNES aspect of my seizures I am thinking screw it.
If they ever progress to tonic clonics or loss of consciousness then maybe I will get proper treatment.
And have Drs look me in the eye again because my goodness stigma is alive and very well in the medical field.
That is what has always stung the most. And I have seen 8 neurologists over the years.
I do choose life. And my seizures do not define me.
I am a mother. Employed. A wife. A daughter, sister, friend... I haven't driven in 6 years because no matter what kind of seizures you have they can take away
your license. I understand. I understand it all.
I don't even have a neurologist or epileptologist anymore.
I leave it all to fate now.
Foolishness?
I have changed. I am no longer the person I once was.
But....time goes on.
We survive.
I am thankful for much.