Hi Everyone :hello:
Dallas, I'm pretty much in the same situation as you - JME diagnosed at 14 - prescribed Tegretol first which didn't work then switched to Epilim 1000mg per day (slow release). No seizures for the last 10 years..touch wood. I'm now 27 and planning on trying for a baby soon. I have been put on vitamin B and 5mg of folic acid per day.
Neurologist suggesed slowly coming of meds but there is no way I want to risk that. My other option is to switch to lamical/lamotrigine but I haven't heard many great reports about that.
I just think that as Epilim controls my epilepsy SO well, how can any other meds possibly be better?!
I'm SO worried about having a seizure during pregnancy but obviously I am aware of the risks of continuing with the Epilim throughout pregnancy....
Have done a lot of research and now I just seem to be going round in circles as to what to do for the best.
Any help or personal experiences of JME and pregnancy / Lamotrigine and pregnancy or switching from Epilim to Lamotrigine would be greatly appreciated!! As well as any other help