Seeking answers regarding Left Temporal Resection Postop (18 yrs later)

suebear

Stalwart
Messages
937
Reaction score
24
Points
93
It might sound like an odd topic but there has been some odd issues coming about even now and I wanted to know if there was anyone here who had gone through the Left Temporal Lobe Resection aka Lobectomy could actually help me figure this out. Here is what's happening --

The surgery took place in 1995; it was a total success and I was seizure free for five years after the fact. What did take place shortly there after the surgery is I began to have chronic migraines and it was always a chance they could come about as a side effect for post-op. The hope was they would eventually wear off. Well here we are 18 years later and I'm still having them. They have actually gotten more intense.

What is starting to happen is the impact pain around the area of where the surgery had taken place. If any of you are aware of how the incision is made, the cut is done in the form of a question mark, from the left temple to the left ear lobe. In my case, what has been happening for the past 32 hours I have been experiencing extreme chronic migraine pain throughout the left temple in a pulsating fashion traveling backward into some of the incision area which is well healed over and I am also experiencing this chronic migraine pain throughout my left eye; at times there will be an inward feeling of pulsation on the left face cheek going downward every so often.

The right side is just fine and I have not had any problems whatsoever. This activity is mainly happening all on the left. There had been thoughts of this taking place possibly because I was babying the incision recovery after the first surgery but now I am beginning to wonder if it is something more.

I've considered the idea of contacting my current neurosurgeon so he can then reach out to my migraine specialist on this matter because this is a very odd factor. What I am finding odd and perhaps someone can answer this; last Thursday I had gone into my back doctor who performs trigger shots and he had taken care of me just fine. During my time in his office we chose to perform two shots in the neck area for a reoccurring migraine. By doing those two shots it resolved that reoccurring migraine and forced it to go away, for a little over 32 hours approximately.

The larger problem has become a severe chronic migraine that is unable to be explained. As of this afternoon, I had taken 2.5 mgs of Hydrocodene (prescribed) to eliminate my migraine and unfortunately it has not gotten rid of it. I still feel the pain in the back of my left eye, traveling down my left face cheek and in my left temple. What is more odd, I'm feeling it now on the left side of my jaw line. I've never had this problem. I've not taken anything at this time and I don't wish to over take anything. I am at a total loss on what could be causing all of this to take place so I thought the best place to start for research before making phone calls Monday morning would be here.

I appreciate any and all thoughts on the above matter.
 

Cint

Veteran
Supporter
Messages
5,521
Reaction score
10
Points
193
I had a Left Temporal Lobectomy in 1990 and was seizure free for 14 months. However, I did experience those awful migraines for several months after the surgery, but they dissipated within 6 months. I do occasionally experience a migraine, usually every 6 months or so. When I started having seizures after the surgery, some of the AEDs brought on the migraines, also.

So I would say call your neurosurgeon, neurologist, and migraine specialist and find out what is going on to be causing these headaches. Refresh my memory, but did you have the VNS taken out? What about the DBS? Could these be contributing factors?
 

suebear

Stalwart
Messages
937
Reaction score
24
Points
93
I had a Left Temporal Lobectomy in 1990 and was seizure free for 14 months. However, I did experience those awful migraines for several months after the surgery, but they dissipated within 6 months. I do occasionally experience a migraine, usually every 6 months or so. When I started having seizures after the surgery, some of the AEDs brought on the migraines, also.

So I would say call your neurosurgeon, neurologist, and migraine specialist and find out what is going on to be causing these headaches. Refresh my memory, but did you have the VNS taken out? What about the DBS? Could these be contributing factors?
Yep, I went one step further since this hasn't gone away and doesn't seem to be leaving any time soon. I sent an email out to the nurse for my migraine specialist and the nurse for the neurosurgeon last night explaining everything in detail so they will receive it Monday morning. Oh, to answer your question.. the VNS and the DBS work together to keep the seizures under control.. neither will be removed.

Chronic migraines have been coming originally from the temporal lobe resection yes but I have been obtaining trigger point injections for a back injury from a car accident (passenger) that have been helping. What we did this time was I had gotten two shots in the higher parts of my neck and I am thinking that could be causing this massive migraine on the left side of my head - I was fine before the two injections had taken place.
I've already determined that I will not have any more trigger shots in my neck again as I was fine up until this taking place.

I sent out an email to my neurosurgeon nurse as well as the migraine specialist nurse so they will be receiving them on Monday morning. I'll probably phone them as well so we can talk further.
 
Last edited:
Top