tell me about your friendship circle

[gina19]

So, for me, ever since I was diagnosed, I have prefered to talk to other people with epilepsy. I have found it easier to talk to them, open up, discuss things (that I wouldn't discuss with anyone else), and just be me. Maybe it's because I know they won't judge me (and I've been judged by so many people before who don't have the condition!), or maybe it's something else.. I don't know.

I do talk to people without the condition, but I found those friendships tend to end pretty quickly when they realise I have seizures.

So what is your experience. Do your friends have epilepsy?, or if you have friends who aren't, how do they deal with it.. are they okay.

 

[Porkette]

Hi Gina,

I'm just like you I tell everyone about my epilepsy and what to do if I have a seizure that way they aren't so worried or
afraid when I have a seizure.

I have both family and friends with epilepsy but I've found my family has turned away from me because of my epilepsy
and they won't accept me. I just told them that's your problem not mine because I've done everything I can to better
myself including surgery. Now when it comes to my friends they understand it a lot more than my family and things
go very well.

Here's wishing you only the best and May God Bless You,

Sue

 

[Sabbo]

Most of my friends are other women at the masjid I attend. I met them when my sons were much younger & going to classes there on the weekend. All of them know about my epilepsy and what to do in case of a seizure. The best part is that one of them (who, unfortunately isn't there every week) is an MD--she's a pediatrician.

I don't have any family members or friends who have epilepsy. I do feel that some of my relatives treat me differently due to epilepsy preventing me from working. They will literally ignore me when we're sitting together, and converse with each other as if I'm not there. Even when they're discussing things I know about/understand because of my educational background. That's one thing that makes family get-togethers very stressful for me. My mother's always pushing me to engage with them. I try--I can't force them to include me in their conversations.