Terror feelings with simple partials

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SimplePartialGal

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I am new to this forum but not new to seizures. If you have ever experienced awful feelings of terror with simple partial seizures, I am the one to talk to. I am seizure free with daily meds. I am not asking for help, I would like to discuss this and help others cope. I experienced these symptoms for 20 years. Other symptoms included bad headaches, sleepiness, loss of thought and auras. I was always aware when seizures were happening, but had to ride them out. This is still a part of my life with the awful memories. Talk to me if you need help or have the same experience.
 
we're same, different name.

just fyi :) simple partials and auras are the same thing, interchangeable names which is unfortunate b/c it should only be known as an s.p., but that's medicine for ya.

welcome to the forum.
 
I read somewhere that if a simple partial leads directly to a tc it is considered an aura, but if it stands alone it is a seizure. Seems to make sense. This is what Wikipedia says about it:

Simple partial seizures are seizures which affect only a small region of the brain, often the temporal lobes or hippocampi. People who have simple partial seizures retain consciousness. Simple partial seizures are often precursors to larger seizures, where the abnormal electrical activity spreads to a larger area of (or all of) the brain, usually resulting in a complex partial seizure or a tonic-clonic seizure. In this case they are often known as an aura.
 
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that's just it arn... "in this case they are often known as an aura."
that usually comes down to what your neurologist refers to them as, which can change even from country to country. also... when i want to know something for real, wikipedia is the last place i'd look, even if it was something about dish soap. very unreliable.


EMEDICINE.MEDSCAPE.COM

Auras:
An aura is a subjective sensation and is a Simple Partial seizure (ie, the initial part during which the patient is aware).
Click to expand...

i could give you many other reliable sources but i'm at work/too busy!!
 
Hi Q, are you reading CWE when you're supposed to be working?!?! For shame!!! :)
I think your quote from emedicine says kind of the same as what mine was saying, in that an aura is a seizure in and of itself, in which case it would be called a partial, or the initial part of a tc, the part where the patient is aware, in which case it would be the aura of the tc.
I know what you mean about Wikipedia, but I had read that aura/seizure stuff somewhere else as well, years ago, and it seems to make sense.

Get back to work now, or I will tell your boss! :)
 
I'm at work too today.. this is better than working though.

Maybe my terminology is wrong.. but I've always had two different types of sp's, the less severe I've always called an aura. For me it's feeling shaky, sensations of fear, deja vu, etc. Also the feeling that I could go into a tc or a full sp. I get these almost daily. I can still communicate and so on but I'm incredibly distracted. Like there's someone poking me in the brain and it's hard to get anything else done.

What I called the full sp was when these feelings were much more severe, was still conscious and aware of my surroundings but can't communicate until it's over. And I can't speak or read for 15 mins or so after.

So is it just different levels of severity for sp's?

SimplePartialGal - welcome to the forum. I haven't had feelings of terror, but definitely fear.
 
morning chris,
a simple partial is a simple partial. there can be ones strongers than others, but it's still the same name/reference - simple partial. i can almost guarantee what you call a 'full simple partial' is a complex partial. i have both, and also had a few complexes in the seizure unit, when the team watched it on video my doc told me 'those were complex, you were a lot less aware than you thought you were.'
you stay conscious for the most part but lose the ability to talk properly or stay on task.

have a good day bud :) YAY monday!
 
Hi and thanks for your reply. I had 2 types too. The milder form happened when I was younger. I could work through them, hide the fact something was wrong and they weren't as intense. They gradually got worse but I generally had the same symptoms. Seizures would get more terrorizing, they would last longer, I couldn't communicate and took longer to recover. My logic told me there was nothing to fear but nothing would stop my brain from going crazy. It sounds like I ended up having severe simple partials. Like you, I feared I would go unconscious. I would get seizures every couple of months or so. I would get about 20 a day for a couple of days. I knew they were going away because they would gradually become mild auras, then stop. I got by a long time before seeing a doctor. Even my parents did not notice anything when I was young. I think there are different severities and completely different symptoms. I have read some people even have enjoyed (euphoric feeling) simple partials. Thanks for your information, it can feel really lonely when all of people around you do not know what it is like.
 
welcome.

I too have simple to complex partials.

It's great that you have complete control on your seizure with meds.

My seizures are much better than in years past but I still have break through.
 
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qtowngirl said:
morning chris,
a simple partial is a simple partial. there can be ones strongers than others, but it's still the same name/reference - simple partial. i can almost guarantee what you call a 'full simple partial' is a complex partial. i have both, and also had a few complexes in the seizure unit, when the team watched it on video my doc told me 'those were complex, you were a lot less aware than you thought you were.'
you stay conscious for the most part but lose the ability to talk properly or stay on task.

have a good day bud :) YAY monday!
Click to expand...

morning qtowngirl,

Thanks for the clarification.. definitely had my terminology wrong. didn't realize about the complex partials. I thought they were only like the ones I had as a kid, which were full loss of consciousness. I never really looked into it!

have a good day too!
 
you're welcome :) good to know too for next time you're at your neuro's. now, one bad thing about complex is b/c you do lose 'somewhat' awareness they take your license for them. not good, i was so pissed when i found that out, thought it was only for grand mals. however, if you're not driving anyway i guess what's the difference.
like a simple wasn't enough ey; good times.
 
Yeah they took mine away a few years back when I landed in the hospital.. fell out of bed during a tc and cracked my head open on the night table. can't believe the amount of blood that came out of my head! :P

Anyways.. I hadn't driven for a few years before that. too many cp's which came on with little or no warning. I was too stressed out every time I had to drive that I thought it just wasn't worth it.

On the plus side I have plenty of funny bus stories.. :)
 
This is the first time in my life I've had to ride the bus and holy moly there are some interesting people on there!! lol
 
I've seen some crazy things on the bus.

one time a guy took out some x-rated magazines and started reading them like it was nothing out of the ordinary. People complained, he just shrugged and went back to his reading..

one time a guy got on with his arms full of deer antlers, he kept hitting people with them while heading to the back and ended up dropping them all.

another guys pants caught on fire.. that was a strange one. he must have had some chemical on them which combusted. it was winter and we were on one of the old buses with the scorching hot heaters under the side seats so I guess that's what did it.. he quickly took them off and stamped the fire out.

but you sure don't expect to hear 'holy crap my pants are on fire!' while on the bus.
 
Chris515 said:
one time a guy got on with his arms full of deer antlers, he kept hitting people with them while heading to the back and ended up dropping them all.
Click to expand...

:roflmao::roflmao::roflmao:

that's awesome.
 
qtowngirl said:
:roflmao::roflmao::roflmao:

that's awesome.
Click to expand...


Oh yes - some interesting people indeed! This old woman hit me with a cane one time because I apparently was sitting in "her seat." She didn't say anything.... just hit me with the cane, lol.
 
I have complex partial and they are indeed scary at times. I usually remember what happens but boy I, like others on these forums am scared I may have a grand mal. But I take the bus as well is a mid-sized city and there's quite the interesting folk. I once encountered 2 men arguing over how they were going to rob someone later. Just the other day I had a guy trying to pick up a girl on the bus by telling her that he could get her a job at his KFC....everyone on the bus just laughed when he said that.
 
brydy23 said:
Just the other day I had a guy trying to pick up a girl on the bus by telling her that he could get her a job at his KFC....everyone on the bus just laughed when he said that.
Click to expand...

Nothing like fast food job offers to impress the ladies.. lol!
 
that was the worst part of my seizures, was the aura or the simple partial or w/e it can be called. The feeling dread and I'd rather deal with a seizure then the before or after. I'm sorry you have to deal with it.

I get them whenever I wake up, so I avoid naps. Seriously without fail, as soon I wake up I get that terror feeling mixed with stuff I can't even explan.
 
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