My little man, now 26months, has been up to his usual and making us think things are all good then we get big reminders that things are not so right. Over the last couple of weeks I have had several calls from child care re his change in behaviours, they don't think it's normal toddler behaviour but are not sure, so we have now come up with a simple way of testing if something is happening we ask him were the parts of his face are, usually he can point to them but when he is NQR he can't. He has also had his usual smaller events, strange low temps and other quirks. He has been referred to Early Intervention so we are just waiting to get information re his first appointment.
My husband although he knows our youngest has issues doesn't like to fully acknowledge his condition so when he comment's like he did today you know it's something really obvious. Our little man was playing on play equipment at a McDonalds and had been going up the stairs and down a small slide quite a few times when he got to the bottom and looked so confused he then paced back and forwards in front of the equipment not sure what to do how to get back up, it was quite sad to watch he was so confused, so I took his hand and helped show him what to do again and after a few times it was like he was able to do it again. He then his his chin on the slide hard but didn't even acknowledge it only for us to see the largest bruise later in the day, another worry is that he doesn't always feel pain like most do. Around the same time he tried to walk back down the stairs and struggled, not just your 26month old nervous/unsure but like his legs struggled to hold him and he struggled to make them go down the stairs, they were quite shakey. He had quite a bad morning with quite a few little seziures, a couple of seconds each. I wish they could work out what is happening as it is times like this that I worry more as if there is a chemical "imabalance" in his brain at these times what if it ends up one day doing permanent damge and he does not "come" back to being his normal cheeky self. We have accepted he has a brain lesion and at least we know about it but the unknown at the moment worry's us more.
On a positive note - his paeatrician has written the most fantastic letter for his child care re his issues and they have said they are confident with this he will be able to have his special aid for another year. At times I feel guilty he has this special assistance as he can be so normal but then other times it is so obvious he nees the assistance.
Tonight I am sure he ws still quite a bit NQR, small events etc but in between when I read him a book on two of the pages he told me the last word when I left it off. So proud of him.
Sorry for the long post my friends try so hard to understand and often ask about my kids but I hate the look of pity they have at times. What is happening to my little man at times is quite worrying but I am so thankful that I have you all here just to even write my post. The support I have had from you on this journey has been amazing.
Donna
My husband although he knows our youngest has issues doesn't like to fully acknowledge his condition so when he comment's like he did today you know it's something really obvious. Our little man was playing on play equipment at a McDonalds and had been going up the stairs and down a small slide quite a few times when he got to the bottom and looked so confused he then paced back and forwards in front of the equipment not sure what to do how to get back up, it was quite sad to watch he was so confused, so I took his hand and helped show him what to do again and after a few times it was like he was able to do it again. He then his his chin on the slide hard but didn't even acknowledge it only for us to see the largest bruise later in the day, another worry is that he doesn't always feel pain like most do. Around the same time he tried to walk back down the stairs and struggled, not just your 26month old nervous/unsure but like his legs struggled to hold him and he struggled to make them go down the stairs, they were quite shakey. He had quite a bad morning with quite a few little seziures, a couple of seconds each. I wish they could work out what is happening as it is times like this that I worry more as if there is a chemical "imabalance" in his brain at these times what if it ends up one day doing permanent damge and he does not "come" back to being his normal cheeky self. We have accepted he has a brain lesion and at least we know about it but the unknown at the moment worry's us more.
On a positive note - his paeatrician has written the most fantastic letter for his child care re his issues and they have said they are confident with this he will be able to have his special aid for another year. At times I feel guilty he has this special assistance as he can be so normal but then other times it is so obvious he nees the assistance.
Tonight I am sure he ws still quite a bit NQR, small events etc but in between when I read him a book on two of the pages he told me the last word when I left it off. So proud of him.
Sorry for the long post my friends try so hard to understand and often ask about my kids but I hate the look of pity they have at times. What is happening to my little man at times is quite worrying but I am so thankful that I have you all here just to even write my post. The support I have had from you on this journey has been amazing.
Donna