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Hi, I don't have epilepsy, but I have an autoimmune disease called sarcoidosis, which generally attacks the lungs, but sometimes it attacks the CNS and eyes and other systems.
Right before my diagnosis of sarcoid, I was beginning to have anxiety-like symptoms in addition to physical ones. My most unusual symptoms are visual, what I have are scotomas, visual snow, flashing lights or colored specks in my field of vision, blurry and double vision, and a slight decrease in vision.
During episodes like these, my muscles start tightening and sometimes my neck, arms and legs jerk just a little and my eyelids twitch. I also have numbness and strange sensations, like cold air is blowing on my face or another body part from an unknown source, my shoulders burn and buzz, as well as my feet, I get weird, uncomfortable ticklish sensations in my stomach and abdomen, or my abdominal muscles clench involuntarily, I feel dizzy and lightheaded, sometimes I feel faint, or have trouble breathing, or I smell things that aren't real, or I even feel nauseated.
Sometimes the symptoms are cognitive, where I feel confused, or I forget what I'm doing, and I get up and walk around for no reason. Other times, I have trouble understanding words briefly, or when talking I start stuttering or make a soft noise involuntarily.
These experiences are nothing like panic attacks or anxiety, but in some ways more akin to a bad psychedelic trip. My twitching eyelids annoy me the most, because I feel like people can see it, and you can.
Right before my diagnosis of sarcoid, I was beginning to have anxiety-like symptoms in addition to physical ones. My most unusual symptoms are visual, what I have are scotomas, visual snow, flashing lights or colored specks in my field of vision, blurry and double vision, and a slight decrease in vision.
During episodes like these, my muscles start tightening and sometimes my neck, arms and legs jerk just a little and my eyelids twitch. I also have numbness and strange sensations, like cold air is blowing on my face or another body part from an unknown source, my shoulders burn and buzz, as well as my feet, I get weird, uncomfortable ticklish sensations in my stomach and abdomen, or my abdominal muscles clench involuntarily, I feel dizzy and lightheaded, sometimes I feel faint, or have trouble breathing, or I smell things that aren't real, or I even feel nauseated.
Sometimes the symptoms are cognitive, where I feel confused, or I forget what I'm doing, and I get up and walk around for no reason. Other times, I have trouble understanding words briefly, or when talking I start stuttering or make a soft noise involuntarily.
These experiences are nothing like panic attacks or anxiety, but in some ways more akin to a bad psychedelic trip. My twitching eyelids annoy me the most, because I feel like people can see it, and you can.