Coping With Epilepsy International Society for Neurofeedback and Research
Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer


Reply
 
LinkBack Thread Tools
  #1  
Old 01-11-2009, 04:58 PM
Big Sis's Avatar
New Here
 
Join Date: Jan 2009
Location: Northern Cali
Posts: 5
Thanks: 0
Thanked 1 Time in 1 Post

Hello!


My little sister has had epilepsy for 10 years now (she is 27). She has been on many different drugs that do not help. The meds have made her tired, depressed, and confused. She is currently on Lamactil and since her last seizures (6 grand mals in 1 day) her Dr. has put her on Keppra as well. She has already tried Keppra years ago and had to get off it because it made her severly depressed. Not sure why he thinks it won't do the same this time???
I have had seizures as well but have not had any in 9 years. I was never put on meds and sometimes wonder what would have happened to me if I were. I joined this forum in hopes of finding hope, support, and helpful information that my help our family through this. Hopefully I can get my sister to check out the forum as well.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 01-11-2009, 06:19 PM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,552
Thanks: 134
Thanked 586 Times in 508 Posts

Welcome to the site


I think your little sis is so lucky to have an older sister that can truly empathize with her seizures.

This place is a great resource for information. Check out the Epilepsy News as well as the forum, there's a lot of interesting stuff there too. I think you'll also find the people here to be very helpful & supportive. I know I have. Meanwhile look around & make yourself at home.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 01-11-2009, 08:44 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,469
Thanks: 61
Thanked 434 Times in 356 Posts
Send a message via Yahoo to RobinN
Hi Sis - I do hope your sister will come check out CWE
She might find alternatives that would help her to reduce her medication, and feel better over time.
Really great that you have found us. WELCOME
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 01-11-2009, 10:29 PM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,642
Thanks: 84
Thanked 209 Times in 192 Posts
Send a message via Yahoo to Meetz1064

Hi, and


welcome. You have found a wonderful home here. Mr B is an AWESOME host, and built us such a safe haven here.

Feel free to hang out, ask questions, and explore. If we don't know the answers, we'll certainly point you in the right direction.

Make sure you check out all the nooks and crannies, and do get your sister to come exploring, too. I'm sure she'll like it here as well.

Personally, I've found better control since I've gotten onto the GARD diet....

Take care,

Meetz
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 01-12-2009, 12:15 AM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,389
Thanks: 124
Thanked 50 Times in 43 Posts
Welcome!

It's great to hear you are so supportive of your sister. When they find that right treatment for epilepsy, specifically for her, then her quality of life will drastically improve.
__________________
__________________________________________
WARNING: Humor may be hazardous to your illness.
-Ellie Katz
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 01-12-2009, 08:35 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop

 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,727
Thanks: 155
Thanked 595 Times in 268 Posts
Hi Big Sis, welcome to the forum.

There is a wealth of information in here. I'm sure you will stumble upon something that will help. There are many proactive steps she can take as well as complementary non-drug approaches such as diets, neurobehavioral therapy and EEG neurofeedback.

Vitamin B6 supplements can help curb the "Kepprage" (moodiness side effect of Keppra).

Make yourself at home here.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 01-12-2009, 10:31 AM
skillefer's Avatar
Super Moderator
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 40 Times in 34 Posts
Hi Big Sis! Welcome to CWE. I hope you can get your sister to check us out. As for why you've been seizure free for 9 years, who knows. Every brain is different. Some of us outgrow a particular type of seizure. As for the docs med decision for your sister, he might be thinking that the lamictal will balance her out and not cause the depression that she had years ago. It's actually not that unusual for people with seizures to be on more than one medication. Heavens, I was on depakote and phenobarbital for a long time. But then the doc said that I "outgrew" the one that required me to take the depakote, so he weaned me off. I wish your sister the best of luck. Also, feel free to ask questions, chime in, or just vent in the padded room. Epilepsy can be frustrating for the patient as well as the family. There's some great info here. So check out the epilepsy 101 thread in my signature, as well as the link that Bernard suggested. Hope this helps.
__________________
"Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."

Epilepsy 101
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 01:24 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.