Coping With Epilepsy Neurofeedback & Counseling Associates
10% off neurofeedback training for CWE members - Las Vegas, NV and Denver, CO
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer


Reply
 
LinkBack Thread Tools
  #1  
Old 12-13-2009, 10:32 AM
New Here
 
Join Date: Dec 2009
Posts: 2
Thanks: 1
Thanked 0 Times in 0 Posts

hello!


I'm glad to have found y'all!

My family has a history of seizures - my grandfather died in his mid forties during what has been described as a "severe, foaming at the mouth " seizure.

Years later, my aunt ( his daughter) developed seizures upon entering menopause.

A few years ago, my brother developed seizures with the onset of puberty.

Now my son, age 12, is starting to have them.



My brother was sent to neurologists, and it looks like epilepsy is not the culprit, but migraines are.

However, the seizures were treated with Dilantin, and my brother's seizures stopped around age 20 ( he's now 43).

My son still has night terrors at this age, and now the seizures. If he eats migraine trigger foods ( chocolate, bananas, hard cheese, etc) he is just about guaranteed to have a seizure ( and it takes him at least a day to recover).

so...... that's why I'm here.

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 12-13-2009, 11:43 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 6,523
Thanks: 174
Thanked 1,507 Times in 1,309 Posts
Hi Libby, welcome to CWE!

It's a great resource for information and community support. There are folks here on CWE who have had success in controlling seizures using dietary approaches, so you may want to search (using the tab at the top) for more about that and other alternative approaches. These days, migraines and epilepsy disorders are considered to be on a spectrum, since they both involve paroxysmal brain activity, and since migraine auras are comparable to those experienced by people with epilepsy.

It looks like you're already well aware of trigger foods for your son. It's a great idea to keep a seizure diary to identify all potential triggers (not just dietary ones, but those related to to sleep, metabolism, activity, stress, etc.). If you haven't already, you might want to add a magnesium supplement to your son's diet, since that can help to stave off migraines as well.

Best,
Nakamova
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
libby (12-13-2009)
  #3  
Old 12-13-2009, 12:19 PM
New Here
 
Join Date: Dec 2009
Posts: 2
Thanks: 1
Thanked 0 Times in 0 Posts
Thank you, Nakamova!

What a wonderful forum y'all have here -

I was looking through some of the info here, and now I'm wondering if we're dealing with Benign Rolandic Epilepsy...?

I don't know.

Won't know till I can afford insurance....

I've just always gone on 20 year old information from my brother...



He always has them at night ( grand mal), he still has horrific night terrors, but they're tapering off...

he's dyslexic, he has ADHD - no meds, homeschooled - the FUNNIEST SWEETEST BRIGHTEST kid around.

well, I think so, anyway.



...and we just started the magnesium supplements.



I'm going to keep reading...this place is a gold mine. Now I'm wondering about MYSELF... some of the types of seizures sound really, really familiar...

PLUS.... I'm on Lamictal, but for depression.

hmmmmmmmmm.............

Last edited by libby; 12-13-2009 at 12:21 PM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 12-13-2009, 01:06 PM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,552
Thanks: 134
Thanked 586 Times in 508 Posts

Welcome Libby


While waiting for insurance you might want to check out this list of alternative treatments. Hopefully you can find one that's useful or at least helpful.

http://www.coping-with-epilepsy.com/...ive-treatments
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 12:47 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.