Dietary changes and seizure control

How much coconut oil do you take every day?


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His neurologists used to think he might grow out of it, but that hasn't been said recently. Now we're being warned that puberty may be a difficult time, seizure wise.
 
Puberty brings on heaps of hormonal changes. My girl was 10 yrs 2 months when she began her periods.. I really felt for her it was too damn early, it was like another blow to her challenges with the epilepsy and autism. Again, depending on the type of anti seizure meds some do interfere with the pills effectiveness. I also have to see a gynaecologist for support in this area.
That's a disadvantage of being female as opposed to a male going through puberty. :(
My Husband & I still hope she may outgrow it, we can only hope that's all.
 
Hi Zoe
I've checked out someof Paul Whiteleys blogs that interest and is relevant to me..
I've looked into his " gutless gracious me " and I quite like there's reasearch stuff to check out.
Thanks so much for providing this link. It was very thoughtful of you. He is definately on my list to check out for now and future stuff.
 
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This is a suggestion and I'm not telling anyone to do this, but if anyone requires nutitional support, the first port of call can be the local health food shop in their region. The reason I say this is because they do know also local nutritionists and the bonus if the background involves Nutirional medicine.
In other words, they MAY know who does the reputable professional supports.
 
Karen, very sorry to learn about the setback, but happy about the quick recovery. Maybe the virus caused a bacterial imbalance as that's what viruses do, kill bacteria.

There's a lot of new information about how the virome interacts with bacteria, even the idea that there is a healthy virome as part of the microbiome. But viruses can set things off balance, here's an illustration from a recent research paper:
http://www.cell.com/abstract/S0092-8674(15)00003-3

What kind of vitamin C are you using and at what dose? My understanding is sodium ascorbate is the best form (it can cause transient diarrhea quickly). Lysine is also antiviral and plays an important role in brain health, worth researching.
 
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Hiya Keith

Have you tried any of that noni juice we were talking about? I take mine 50/50 with lemon juice so that is my vitamin C supplement.

I've also invented something I call Keto Jello Blox recently. It is a mix of lemon juice, coconut cream, and Great Lakes gelatin, Mix it up in a blender or with a hand blender until fluffy then chill until set. Protip: mix gelatin in gradually so as to avoid clumping.

It tastes like a rather stiff lemon cream pie. :)
 
Keith
I have to take the time to read your old thread. Please retain that link you have in your signature.
I've used the vit c powder with Hesperidian complex yrs ago when one of my twin sons suffered badly from constipation, I loathed to use laxatives... So with prune juice with Vit C resolved the constipation. Too much vit C can cause diarrhoea... I didn't know that until I tried this product... So it can work against the original intention.
 
What kind of vitamin C are you using and at what dose? My understanding is sodium ascorbate is the best form (it can cause transient diarrhea quickly). Lysine is also antiviral and plays an important role in brain health, worth researching.

500 mg daily of vitamin C, ascorbic acid in his supplement, plus 30 g daily of fresh lemon or lime juice in his homemade electrolyte drink.

Aloha- those Keto jello blox sound yummy!
 
Wow oh wow what a thread that was Keith, I basically skimmed through it and it took me a couple of hours..

Before meeting Dr Tabrizian (my girls Dr that specialises in medical nutrition) my life revolved about questioning why the hell my girl kept making "pasty" type bowel motions despite giving her a healthy high fibre diet that aimed to bulk up the poo.
So, the simple qn that kept getting to me was .... " what's she eating that's not agreeing with her?"
I've explained previously the method of what's called DOM Diagnostic Orthomolecular Medicine . This is what Dr Tabrizian does. He has written various books that actually stated that " ...many research groups around the planet have challenged the misconception by mainstream medicine that Autism is just a mental illness." His words not mine .
All his patients including my girl undertake hair analysis which measures the nutrient mineral levels and toxic elements like arsenic, cadmium, lead and aluminium affects nutrient levels by pushing some minerals in the higher than reference range.
Low and high levels which are deviations of the reference range are MESSAGES which help the interpretion of what's going on.
 
A couple of things I wanted to go through with that thread..
*The issues of malabsorption that affects diarrhoea, .. Ever wondered why the Drs ask ask if all those antibiotics agree with you ..Any side effects? What happens when you get diarrhoea you are not going to absorb any nutrient and or meds, simple as that.
*The benefits of magnesium & zinc is worth checking closely.
*what is " nightshade " foods????
*why exactly do we need glutathione? How does it protect brain cells from the damaging effects of Mercury.. Something Dr Tabrizian makes me think about.. The more severe the Autism the harder it is to get rid of the Mercury....how do I know that ??because my girl gets hair analysis done over the last 8 plus yrs only , only recently just this year has her Mercury decreased much efficiently to 1.52 ( ref range is 0-1.0) getting there very slowly.
*Silver Colloid has been used to reduce the effects of loose bowels short term
*Karen have you ever had your Son tested for Giardia ? It's quite a nasty bowel infection, and my girl required treatment for it.. She had it once it was enough...
*selenium have used Sodium Selenite
*Taurine very important

Keith?
Take a good look at "Chlorella Wakasa Gold, "it's not a total baddie it was used in my daughters nutrient detox regime.
*The importance of understanding potassium levels carefully, when it involves food choices. Bananas are naturally high but if there's a medical condition like kidney failure... Well too much Potassium can be a serious health issue.
* the value of garlic as superfood

A fantastic post by Cuppycake says it all really.
 
I also follow ( not fully restrictive) the dietary guidelines go with IBS it's a low FODMAP diet by Monash University.
Foods containing excess fructose, lactose, fructans (GOS)& polyols, are considered the foods to avoid.

Results is definate no more pasty stools, sometimes there's rare days... But it's much better than before. I'm sure we've all sometimes have varied bowel motions too.
 
nightshades

Nightshades are a group of foods that include eggplant, tomatoes, peppers (bell, cayenne, paprika etc. but not black pepper), potatoes (but not sweet potato), goji berries and tobacco.

Nightshades contain Glycoalkaloids and nicotine in the leaves, flowers and unripe fruit. Glycoalaloid is a neurotoxin (so could potentially cause seizures) and also can contribute to leaky gut.

They also have many good qualities -- such as high in vitamins and antioxidants, low in carbs (except potatoes), anti-microbial, and anti-cancer.

Some people are more sensitive to these foods than others. Before Jon started the Keto diet, he'd get diarrhea every time he ate spaghetti (even when using rice noodles) which we'd make with tomato and bell peppers (along with other veggies). He also had several seizures within about 30 minutes after consuming eggplant. So we decided to take this group of foods out of his diet. About a year ago, I tried reintroducing tomato, but he got these big pimples all around his mouth, so took them out again.
 
Thanks for clarifying those "nightshade foods" I've never heard of that ..it must be a US lingo :)
Interesting that tomatoes, potatoes are some baddies.
The FODMAP dietary guidelines considers these to be ok foods... However the following foods I avoid is corn, restrict the carrots, mushrooms, peas. .. These seem to go through her. Strawberries interestingly give her a skin rash, so I tend not to give her berries, but it's consided to be an ok FODMAP fruit.
Onion and garlic is considered a baddie FODMAP but I do give some garlic . As I'm aware of the positives of garlic.

So I modify to suit.
This was initially set up with the Dietician.
 
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Nightshades are a very individual thing. Some people have horrible reactions from just a little cayenne seasoning. With me, I wouldn't really eat many veggies at all if it weren't for nightshades. Many of the nightshade family such as tomatoes and eggplant are really fruits that hide in the veggie department.
 
I know! The rest of us eat tons of nightshades without ill effect. I think the toxins are more pronounced if the fruit or veggie isn't mature (like potatoes that still have green on them) or maybe green tomatoes? I prefer the red and yellow bell peppers (which are more mature) than the green bell peppers, because of the sweeter taste. I suppose the green ones have more of the bitter toxin. I know tomato is one of those foods that a lot of people are allergic to. My mother would break out in hives when she ate tomatoes.
 
On other fronts, we were at an event sponsored by my husband's department on Friday night, and another family was there with their elementary aged boy in a wheelchair. Turns out this boy got the same virus (apparently) that Jon got and is still paralyzed in the one leg after a week. And this boy doesn't have epilepsy. Our neurologist was assuming that Jon's temporary paralysis was the Todd's paralysis that some people get after a seizure (and which goes away in a day or two). But the odd thing is that Jon was walking around an hour or so after the seizure, but then was paralyzed in the left leg the next day. If it were Todd's, would he have been immediately paralyzed rather than the next day?

So, I went online, and the CDC has mention of a new virus that is affecting elementary aged children around the country (34 states). It starts as an upper respiratory infection, and then in some children progresses to neurological events, such as seizures and on-going paralysis (accompanied by lesions on spinal cord and brain stem). Something like polio. They think it's some sort of entero virus.
http://www.cdc.gov/ncird/investigation/viral/2014-15/investigation.html

So, now I'm wondering if Jon's seizure and temporary paralysis was caused by this virus that affected the other boy. And, if so, why did Jon bounce back, when the other boy (and most other children with this virus) remain paralyzed? Could it be the neuroprotective effect of the Ketogenic diet? Or the probiotics he was on? Or the Zonegran?
 
I know! The rest of us eat tons of nightshades without ill effect. I think the toxins are more pronounced if the fruit or veggie isn't mature (like potatoes that still have green on them) or maybe green tomatoes? I prefer the red and yellow bell peppers (which are more mature) than the green bell peppers, because of the sweeter taste. I suppose the green ones have more of the bitter toxin. I know tomato is one of those foods that a lot of people are allergic to. My mother would break out in hives when she ate tomatoes.
Also a lot of people who have nightshade issues are fine with them as long as they are cooked. Almost all of the nightshade toxin in a potato is in the skin. I never understood that "bar food" fad of potato skins. I suppose just a delivery device for all the gooey cheese and such.
 
Hee hee. I'll have to remember that the next time my husband chastises me for not eating my potato skin.
 
Hee hee. I'll have to remember that the next time my husband chastises me for not eating my potato skin.
Well, Hubs does have a point that the vitamins and such are in the skin too along with the anti-nutrients. The inside of a potato is pretty much just starch. This is why I don't generally eat potatoes.
 
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