Coping With Epilepsy Austin Biofeedback and EEG Neurofeedback Center
10% off neurofeedback training for CWE members - Austin, TX
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 06-05-2011, 06:47 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 1,002
Thanks: 130
Thanked 169 Times in 146 Posts

Getting a hysterectomy


I'm 34 and because of all the epilepsy meds I'm on and the seizures that I have I can't have children. I know it's really not good to be on birthcontroll for long periods of time either.

I've been asking my gyno for the last few years about having a hysterectomy and he keeps telling me that it's not a good thing to have done until you're in your mid to late 30's. I'm 34 now and I'll be going to my yearly visit in a few weeks and I'll be asking him about it again.

Can anyone give me any pros or cons about having it done? Anyone who's had one and how it's effected them. I know that you also have to take some meds after you've had one also.

Any information will be appericated, thanks.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 06-05-2011, 07:06 PM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,849
Thanks: 159
Thanked 719 Times in 605 Posts
Did you ask about having a tubal ligation instead of a full hysterectomy?
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 06-05-2011, 07:51 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 7,569
Thanks: 206
Thanked 1,911 Times in 1,636 Posts
A hysterectomy is major surgery! If you're just looking for birth control, you could get an an IUD, or as Eric suggests, have your tubes tied.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 06-05-2011, 08:33 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 1,002
Thanks: 130
Thanked 169 Times in 146 Posts
I'm on depoprovara now. I went on that because the peirods that I would have were horrible.

They were always irregulator, very heavy and I would have horrible cramps, headaches and they would last forever. That's why my gyno suggested taking depoprovara so that I wouldn't have a period.

That's why I'm afraid if I get my tubes tied all these things would start again. I know that it is major surgery but I don't want any chance of getting pregnet either, which I know there is a small percent that you could get with getting my tubes tied. I'm on so much medication that I don't know what would happen if I had to go off any of it, or if I were to stay on it and what may happen to the baby.

Plus I don't think I'd beable to handle a child.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 06-06-2011, 08:38 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 7,569
Thanks: 206
Thanked 1,911 Times in 1,636 Posts
Don't rule out the IUD -- I'm on it and it works fine. You could look into the kind that has progesterone, it might help with the hormonal issues.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 06-06-2011, 09:47 AM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 1,002
Thanks: 130
Thanked 169 Times in 146 Posts
I would become extreamly emotioal also. I'd get to the point sometimes where I'd like to strangle someone. I'm like that on the keppra now so I could only imagine what the two would be like mixed together.

Thanks Nakamova, I'm going to do some reading up on that. If I have any questions would it be alright if I sent you some private messages so we could talk about it?

I'm on Depakote, Tegretol, Keppra and Lamictal. I also have a VNS. I want to know if it would work with taking all these meds also.

Also if there's anyone else out there that has one could you let me know too. I'd like to see how it works with other people. Send me a pm, I think I'd feel more comfortable talking about this in private, thanks.

Last edited by valeriedl; 06-06-2011 at 10:03 AM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 06-06-2011, 10:05 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 7,569
Thanks: 206
Thanked 1,911 Times in 1,636 Posts
Absolutely, feel free to PM me any time.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #8  
Old 06-06-2011, 11:28 AM
Cint's Avatar
CWE Supporter
 
Join Date: May 2008
Location: Littleton, CO
Posts: 1,802
Thanks: 162
Thanked 489 Times in 366 Posts
Originally Posted by valeriedl View Post:
They were always irregulator, very heavy and I would have horrible cramps, headaches and they would last forever. That's why my gyno suggested taking depoprovara so that I wouldn't have a period.

That's why I'm afraid if I get my tubes tied all these things would start again. I know that it is major surgery but I don't want any chance of getting pregnet either, which I know there is a small percent that you could get with getting my tubes tied. I'm on so much medication that I don't know what would happen if I had to go off any of it, or if I were to stay on it and what may happen to the baby.
Hi Valerie,

After my two children were born, not only did my seizures start getting so out of control, so did my hormonal issues. My ob/gyn at the time kept telling me I was too young to be going through "the change", the mennorahagia in my early 30's, along with night sweats. Crazy, heavy periods that sometimes would last 10 days. Next time maybe 3 days.

For some women with epilepsy, hormonal problems goes with the territory.

I finally had a tubal ligation when I was certain I did not want any more children and haven't had hormonal problems. Are you sure you would want to have a hysterectomy instead?

Originally Posted by valeriedl View Post:

I'm on Depakote, Tegretol, Keppra and Lamictal. I also have a VNS. I want to know if it would work with taking all these meds also.
That seem to me like an awful lot of drugs to be taking along with the VNS.
__________________
"The Golden Rule is that there are no golden rules."
~George Bernard Shaw
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #9  
Old 06-06-2011, 02:29 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 1,002
Thanks: 130
Thanked 169 Times in 146 Posts
Thanks Cint,

We had a heck of a time just trying to get my seizures under control with the meds only, so that's when the neurologist suggested going on the VNS. It has helped alot with number of seizures I have a month and they aren't as long and as bad as they were before I got it.

He's hoping to wean me off some of the meds when he gets the VNS moved up.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #10  
Old 06-06-2011, 03:14 PM
huskymom's Avatar
Esteemed Pillar of the Community
 
Join Date: Apr 2010
Location: South Bend, Indiana
Posts: 735
Thanks: 14
Thanked 152 Times in 125 Posts
I had a hysterectomy when I was 35 (now I am almost 51). Gotta say, it was fantastic! Best thing I ever did. I, like you, had a lot of other issues. Clotting, month long periods, yada yada yada. Tried all of the other stuff, tubes ties, hormone shots weekly...you get the idea. I didn't realize how miserable I was until I had it done. Best of luck!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #11  
Old 06-09-2011, 09:03 PM
New Here
 
Join Date: Jun 2011
Posts: 2
Thanks: 0
Thanked 2 Times in 2 Posts

After hysterectomy what fills the space where the uterus had been?


Originally Posted by valeriedl View Post:
I'm 34 and because of all the epilepsy meds I'm on and the seizures that I have I can't have children. I know it's really not good to be on birthcontroll for long periods of time either.

I've been asking my gyno for the last few years about having a hysterectomy and he keeps telling me that it's not a good thing to have done until you're in your mid to late 30's. I'm 34 now and I'll be going to my yearly visit in a few weeks and I'll be asking him about it again.

Can anyone give me any pros or cons about having it done? Anyone who's had one and how it's effected them. I know that you also have to take some meds after you've had one also.

Any information will be appericated, thanks.
A good place to start, to make a fully informed decision, is with information about the life long functions of the uterus. The uterus is a hormone responsive sex organ that provides structural support to the bladder and the bowel. To find out what takes up the space where the uterus had been, why the vagina is shortened and how much during hysterectomy, why there is diminished sensation in the vagina, labia and clitoris, watch the short video "Female Anatomy: the Functions of the Female Organs" at hersfoundation.org/anatomy.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to nora For This Useful Post:
valeriedl (06-09-2011)
  #12  
Old 06-09-2011, 09:55 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 1,002
Thanks: 130
Thanked 169 Times in 146 Posts
Is there anyone else out there that's had one that I could ask some questions to?

Thanks alot.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #13  
Old 06-09-2011, 10:18 PM
New Here
 
Join Date: Jun 2011
Posts: 2
Thanks: 0
Thanked 2 Times in 2 Posts

Other women to talk to


HERS networks women on a one to one basis. If you would like to hear from other women who have undergone hysterectomy you can go to HERS website and click on Woman to Woman Networking.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to nora For This Useful Post:
valeriedl (06-09-2011)
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Questions about Hysterectomy and Seizures stringbean The Kitchen 8 03-27-2011 10:15 AM
Partials starting again, 9 days since hysterectomy stringbean The Kitchen 17 02-25-2008 09:56 PM
hysterectomy and seizures brkat03 The Kitchen 1 12-06-2007 02:30 PM


All times are GMT -5. The time now is 09:33 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.