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#1
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#2
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pill boxesyou could have her decorate one with stickers, puffy paint, etc to make it hers and seem less likely to look like a pill box. I use a am/pm pill box for my 9 year old and she didn't really react to it. I just told her we needed to use it because it was the best way to see if we remembered to take her pills that day. And she travels between her moms house and our house and it is very handy to transfer her medicine. I also just explained to her that a lot of people take medicine every day and it doesn't make her sick. I used myself as an example because I have to take daily thyroid pills because my thyroid stopped working. Lucky for us, she has not had any more seizures since taking the medicine, so she thinks her medicine really helps her. |
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#3
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#4
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| I had a pill box that looked like a pocket watch. I've since traded it for one that is water proof though. I think it best to look for one with your daughter so she can decide what she likes
__________________ It's no longer a question of staying healthy. It's a question of finding a sickness you like. -Jackie Mason |
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#5
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| I was thinking of the AM/PM pill boxes myself but hadn't thought about buying an inexpensive one and letting her decorate it herself. Being a very crafty girl I bet she'd love that. At first she was real upset about having to take the pills but she has noticed an improvement in her seizure activity so she has quickly changed her opinion on the meds. |
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#6
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| You can get an altoid box and create compartments that will hold an individual pill. That way she could decorate the box. Film canisters also would work, and the top could be decorated with a day of the week. I think we need a design contest... We had one for a while that was a circle with Mon-Sun on the top. Not very large. Now because we are just using vitamins and minerals, we use baggies and I slip a note in each one that reads AM or PM. |
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#7
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| How do you handle the whole no-pills in school thing? I really feel like right now she doesn't need to carry her pills with her (unless she plans ahead to go to a friends house right after school ~ and quite frankly until we get this under control thats kinda out) but if they switch her meds to more than twice a day or give her a secondary one to treat "clusters" then I will need to get pills together for her school, right? Right now she's on Phenobarbital 60 mg. And I have learned that it's considered a second line drug. Why is that? It's cut down the seizures but she still has 2-3 a day (eye rolling). She loves the drug because she feels like she can focus much better but she is also complaining about dizziness. Do you think that it's likely the Neurologist will take her off this drug to try a "first line drug"? |
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#8
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| You get a special form from the school and have your doctor sign it. It explains how much the child is to take and when. The school nurse or office manager typically has these locked up and when the child comes in to take one, it is noted on a chart. So you can go in and make sure that she is getting the correct dose. Just remember to get a new form with each change of med. Also make sure this is changed on her emergency card. This is very important information that is given to the EMTs in case of emergency. |
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#9
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__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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