Coping With Epilepsy Neurofeedback Practitioner Directory
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools Display Modes
  #21  
Old 01-03-2008, 02:27 AM
skillefer's Avatar
Moderator
 
Join Date: Jan 2008
Location: California
Posts: 1,119

On occasion...


I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #22  
Old 01-03-2008, 07:58 AM
Bee91's Avatar
Moderator
 
Join Date: Nov 2007
Location: Ohio
Posts: 332
Send a message via AIM to Bee91
Brain, I have a question...
Does the ringing have to be during the aura? Or could it be at any given time...like a simple partial seizure for instance?
My doctor swears that I have temporal lobe epilepsy but I somewhat disagree with him.
We have diagnosed what type of epilepsy I have due to what my seizures look like, not what EEGs show...EEGs have been inconsisitant. -- Focus too deep in brain we believe...
I thought the ringing was anxiety or medications or something...
Thanks, Brandi
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #23  
Old 01-03-2008, 09:26 AM
Meetz1064's Avatar
Moderator
 
Join Date: Oct 2007
Location: Terre Haute, IN
Posts: 978
Send a message via MSN to Meetz1064 Send a message via Yahoo to Meetz1064
Originally Posted by skillefer View Post:
I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.
Exactly, Skillefer! EXACTLY!! You just gave the description I could NOT come up with!! Words were failing me............me, of all people.............It's like an ELECTRICAL CURRENT........

THANKS!!!

Meetz
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #24  
Old 01-03-2008, 04:16 PM
Bee91's Avatar
Moderator
 
Join Date: Nov 2007
Location: Ohio
Posts: 332
Send a message via AIM to Bee91
Does the ringing get so bad you tilt your head like a dog? It does for me...
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #25  
Old 01-03-2008, 04:40 PM
brain's Avatar
Super Moderator - Malfunction Junction
 
Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,738
Originally Posted by Bee91 View Post:
Brain, I have a question...
Does the ringing have to be during the aura? Or could it be at any given time...like a simple partial seizure for instance?
My doctor swears that I have temporal lobe epilepsy but I somewhat disagree with him.
We have diagnosed what type of epilepsy I have due to what my seizures look like, not what EEGs show...EEGs have been inconsisitant. -- Focus too deep in brain we believe...
I thought the ringing was anxiety or medications or something...
Thanks, Brandi

ANSWER: YES and NO. Yes, you it is temporal lobe epilepsy or FLE
or MTLE or a combination of some of them or all;
but NO it doesn't have to be an aura at all. It
can be merely a misfiring or an overactive activity
going on in your brain; this is exactly what Shands
Hospital Neurology had informed me.

Even though I am profoundly deaf, I still get them
once in a blue moon. Most people usually get them
as a result from a TBI (Traumatic Brain Injury),
which as known as "ringing in the ears" and usually
subsides over a period of time after being hit in
the head, for a generalized common example. Even
high grade fevers can trigger such. Certain meds
can trigger this, and is considered a reaction or
possibility an allergic reaction. There are many
things that can cause this.

But what a Doctor has to look at is the long term
of it: 1) Does it increase? 2) Does it go away if
we change meds? 3) Does it stay the same?
4) Has it always been this way? 5) Did it just
suddenly start? If so, did you just have a major
seizure and strike your head on something? If
unsure, then a Scan should be performed to
check to make sure there's no damages or injuries
inside of your head, including blood clot(s), etc.
6) Does it come and go? If so - is it the same
when it does? Do you have a seizure when it
does come (If so it would be considered an
aura)?

There's a lot to look into - which can be any-
thing from Food (sugar) to Stress as well on
top of it all.

Usually the Neurologist or Epileptologist would
want to know when it's happening so they could
perform an EEG or ambulatory EEG on the spot when it IS
happening to see if they can capture anything.

===========================================

Originally Posted by skillefer View Post:
I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.
Yes, you put it perfectly! It is something like that
at times too.




__________________

Sharon

Advocate & Member of


Head Storms - Resource Center

"Vujà dé - the feeling you've
never been in here before!"


Last edited by brain; 01-03-2008 at 04:42 PM. Reason: added another post quote
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #26  
Old 01-03-2008, 04:46 PM
Bee91's Avatar
Moderator
 
Join Date: Nov 2007
Location: Ohio
Posts: 332
Send a message via AIM to Bee91
what is MTLE?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #27  
Old 01-03-2008, 04:52 PM
brain's Avatar
Super Moderator - Malfunction Junction
 
Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,738
Originally Posted by Bee91 View Post:
what is MTLE?
Mesial temporal lobe epilepsy
MTLE
arises in the hippocampus, parahippocampal gyrus
and amygdala which are located in the inner aspect
of the temporal lobe.


Info from Wiki
__________________

Sharon

Advocate & Member of


Head Storms - Resource Center

"Vujà dé - the feeling you've
never been in here before!"

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #28  
Old 01-03-2008, 05:14 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,912
Sounds like tinnitus to me.

My father has it too. It is exacerbated in his case by high blood pressure and/or spicy foods.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

Would you like to help support this forum?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #29  
Old 01-03-2008, 05:23 PM
brain's Avatar
Super Moderator - Malfunction Junction
 
Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,738
Originally Posted by Bernard View Post:
Sounds like tinnitus to me.

My father has it too. It is exacerbated in his case by high blood pressure and/or spicy foods.
Tinnitus can be determined by the ENT
(Ear, Nose, Throat Specialist) and an
Audiogram will determine that as well,
and as well as you stated - but as for
spicy foods?

That's a new one ... unless you're in
reference to Food Allergy?
__________________

Sharon

Advocate & Member of


Head Storms - Resource Center

"Vujà dé - the feeling you've
never been in here before!"

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #30  
Old 01-03-2008, 07:53 PM
Meetz1064's Avatar
Moderator
 
Join Date: Oct 2007
Location: Terre Haute, IN
Posts: 978
Send a message via MSN to Meetz1064 Send a message via Yahoo to Meetz1064
See, mine's been going on for YEARS.....thru med changes, diet changes, hormonal changes, you name it......and it doesn't correspond to szs or even migraines for that matter. I WISH it did......it would make more LOGICAL sense to me........I've had it for as long as I can remember. I have MRI's done every year anyway, and EEGs a MINIMUM of 1x a year, usually 2x (last year was 4). But like I said before, the last 2 EEGs were the FIRST time ANY seizure activity had EVER shown up on any EEG in my LIFE. Go figure. I just don't get it..........

Me, at a loss for words........weird.......
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #31  
Old 01-03-2008, 10:31 PM
skillefer's Avatar
Moderator
 
Join Date: Jan 2008
Location: California
Posts: 1,119
LOL....every once in a while....thought it was just me.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #32  
Old 01-03-2008, 11:05 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,912
Originally Posted by brain View Post:
- but as for
spicy foods?

That's a new one ... unless you're in
reference to Food Allergy?
No, no food allergy. Peppers do affect brain chemistry and blood circulation.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

Would you like to help support this forum?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #33  
Old 01-04-2008, 01:53 AM
Meetz1064's Avatar
Moderator
 
Join Date: Oct 2007
Location: Terre Haute, IN
Posts: 978
Send a message via MSN to Meetz1064 Send a message via Yahoo to Meetz1064
Bernard..........how do you find out all this stuff? :-)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #34  
Old 01-04-2008, 02:34 AM
Birdbomb's Avatar
Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 1,836

NOT directed at anyone but....


This is one of the ways of finding this stuff! Use a search engine. Use 1 or 2 key words and then refine the search from there. The WHOLE WORLD is at your fingertips!


Plus it helps to have many excellent seasoned searchers working with you.



__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #35  
Old 01-04-2008, 02:27 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,912
Meetz - I'm a bit of a chili head myself...
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

Would you like to help support this forum?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #36  
Old 01-04-2008, 06:08 PM
speber's Avatar
Super Moderator / CWE Muse
 
Join Date: Sep 2007
Location: Austin, TX
Posts: 1,170

Cool


Originally Posted by Bernard View Post:
Meetz - I'm a bit of a chili head myself...


__________________
Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #37  
Old 01-04-2008, 08:29 PM
brain's Avatar
Super Moderator - Malfunction Junction
 
Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,738

Unhappy A pox on Mr. B!


Mr. B is a spoilsport!
Someone paperbag him!


(Prays that none of my Neuros have
read my postings or knows about my
Pepper-aholism!)













I'm a Chili Head.
And I am PROUD!


PEPPERS ROCK!


SALT SUCKS!

__________________

Sharon

Advocate & Member of


Head Storms - Resource Center

"Vujà dé - the feeling you've
never been in here before!"

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Thirteen terribly weird facts about women Birdbomb The Lounge 5 03-31-2008 11:31 AM
Weird Seizure Triggers! Do you have any? BIGMAN131307 The Kitchen 12 01-03-2008 06:54 AM
Hello and a Question about PSE Trinity The Kitchen 11 11-27-2007 10:27 PM
Question for all senmon The Foyer 10 07-31-2007 10:16 PM
A question Rachel The Lounge 3 11-12-2006 10:09 PM


All times are GMT -5. The time now is 11:30 AM.


Powered by vBulletin® - Copyright ©2000 - 2008, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2008, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.