weird question

[skillefer]

I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.

[Bee91]

Brain, I have a question...
Does the ringing have to be during the aura? Or could it be at any given time...like a simple partial seizure for instance?
My doctor swears that I have temporal lobe epilepsy but I somewhat disagree with him.
We have diagnosed what type of epilepsy I have due to what my seizures look like, not what EEGs show...EEGs have been inconsisitant. -- Focus too deep in brain we believe...
I thought the ringing was anxiety or medications or something...
Thanks, Brandi

[Meetz1064]

I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.

Exactly, Skillefer! EXACTLY!! You just gave the description I could NOT come up with!! Words were failing me............me, of all people.............It's like an ELECTRICAL CURRENT........

THANKS!!!

Meetz

[Bee91]

Does the ringing get so bad you tilt your head like a dog? It does for me...

[brain]

Brain, I have a question...
Does the ringing have to be during the aura? Or could it be at any given time...like a simple partial seizure for instance?
My doctor swears that I have temporal lobe epilepsy but I somewhat disagree with him.
We have diagnosed what type of epilepsy I have due to what my seizures look like, not what EEGs show...EEGs have been inconsisitant. -- Focus too deep in brain we believe...
I thought the ringing was anxiety or medications or something...
Thanks, Brandi

ANSWER: YES and NO. Yes, you it is temporal lobe epilepsy or FLE
or MTLE or a combination of some of them or all;
but NO it doesn't have to be an aura at all. It
can be merely a misfiring or an overactive activity
going on in your brain; this is exactly what Shands
Hospital Neurology had informed me.

Even though I am profoundly deaf, I still get them
once in a blue moon. Most people usually get them
as a result from a TBI (Traumatic Brain Injury),
which as known as "ringing in the ears" and usually
subsides over a period of time after being hit in
the head, for a generalized common example. Even
high grade fevers can trigger such. Certain meds
can trigger this, and is considered a reaction or
possibility an allergic reaction. There are many
things that can cause this.

But what a Doctor has to look at is the long term
of it: 1) Does it increase? 2) Does it go away if
we change meds? 3) Does it stay the same?
4) Has it always been this way? 5) Did it just
suddenly start? If so, did you just have a major
seizure and strike your head on something? If
unsure, then a Scan should be performed to
check to make sure there's no damages or injuries
inside of your head, including blood clot(s), etc.
6) Does it come and go? If so - is it the same
when it does? Do you have a seizure when it
does come (If so it would be considered an
aura)?

There's a lot to look into - which can be any-
thing from Food (sugar) to Stress as well on
top of it all.

Usually the Neurologist or Epileptologist would
want to know when it's happening so they could
perform an EEG or ambulatory EEG on the spot when it IS
happening to see if they can capture anything.

===========================================

I don't hear it constantly, but on occasion...kind of a really high pitched sound...like listening to an electrical current.

Yes, you put it perfectly! It is something like that
at times too.

[Bee91]

what is MTLE?

[brain]

what is MTLE?

Mesial temporal lobe epilepsy
MTLE
arises in the hippocampus, parahippocampal gyrus
and amygdala which are located in the inner aspect
of the temporal lobe.

Info from Wiki

[Bernard]

Sounds like tinnitus to me.

My father has it too. It is exacerbated in his case by high blood pressure and/or spicy foods.

[brain]

Sounds like tinnitus to me.

My father has it too. It is exacerbated in his case by high blood pressure and/or spicy foods.

Tinnitus can be determined by the ENT
(Ear, Nose, Throat Specialist) and an
Audiogram will determine that as well,
and as well as you stated - but as for
spicy foods?

That's a new one ... unless you're in
reference to Food Allergy?

[Meetz1064]

See, mine's been going on for YEARS.....thru med changes, diet changes, hormonal changes, you name it......and it doesn't correspond to szs or even migraines for that matter. I WISH it did......it would make more LOGICAL sense to me........I've had it for as long as I can remember. I have MRI's done every year anyway, and EEGs a MINIMUM of 1x a year, usually 2x (last year was 4). But like I said before, the last 2 EEGs were the FIRST time ANY seizure activity had EVER shown up on any EEG in my LIFE. Go figure. I just don't get it..........

Me, at a loss for words........weird.......

[skillefer]

LOL....every once in a while....thought it was just me.

[Bernard]

- but as for
spicy foods?

That's a new one ... unless you're in
reference to Food Allergy?

No, no food allergy. Peppers do affect brain chemistry and blood circulation.

[Meetz1064]

Bernard..........how do you find out all this stuff? :-)

[Birdbomb]

This is one of the ways of finding this stuff! Use a search engine. Use 1 or 2 key words and then refine the search from there. The WHOLE WORLD is at your fingertips!


Plus it helps to have many excellent seasoned searchers working with you.

[Bernard]

Meetz - I'm a bit of a chili head myself...

[speber]

Meetz - I'm a bit of a chili head myself...

[brain]

Mr. B is a spoilsport!
Someone paperbag him!


(Prays that none of my Neuros have
read my postings or knows about my
Pepper-aholism!)












I'm a Chili Head.
And I am PROUD!


PEPPERS ROCK!


SALT SUCKS!

[djimbeau]

i have it i would call it tinnitus except sometimes its not so bad, i relate it to sleep deprivation since ive kept a log it seems to not be there when i feel good but as soon as i feel any kind of weird there it is, try listening to music alot or in the background also i like to eliminate anything that rings similar and if you just get used to it and realize that id doesnt block any other sounds its not so bad it kinda goes away the moment thers another sound then right back