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These are just a few things I've started doing over the past couple of weeks to try and rid myself of the ugly sz's. I've been reading about these things in books, and so on, and for what it's worth they seem pretty interesting :
1. I started taking Magnesium a few weeks ago, 1st thing in the morning. It's a low dosage of 250mg (about 83% RDA) which could be increased if necessary, but I feel I don't need to at the moment. This seems to 'pick me up' quite well in the mornings, and doesn't have any contradictatory effects to my AED's.
2. I'm a person who gets aura's before a seizure, so one of the lucky one's I guess. In the book it quotes that one of the things we can all practice is deep-breathing, preferably twice a day if you can. Just sit back, or lie back, whichever you prefer, and take in as much air as you can, for say a count of 5-8...and then release all the air from your lungs (which none of us are using to their full potential during our normal everyday lifes). Continue to do this for about 10 minutes, if you have the time.....something is better than nothing, if you can't manage the 10 minutes....
....so anyway, back the deep-breathing and aura's. For the past couple of nights, I've had the beginning of an aura where I get an electrical taste sensation. As soon as this arrives, I begin practising the deep-breathing technique as quoted above. I've found that as my concentration is deferred to the deep-breathing, the seizure gets zero focus, and doesn't happen. Now whether that's coincidence at the moment, or whether it's actually working is another thing to resolve with more practice in future events. But it's definitely worth giving a go.....it can't cause you any harm, and can only help increase your lung capacity anyway - so go for it.
3. The other interesting thing I read in the book relating to aura's is other ways to deal with them :
a) for people who have sound aura's, where you may 'hear' things before a seizure : deter the seizure by making other sounds, or listening to some music, or any other form off noise that is available to you at the time.
b) for people who have smell aura's : carry around a small bottle of essential oil with you, and when you get the dreaded smell of the aura appear, sniff the scent of the essential oil. You may need to look up what essential oils are okay for you, all I know is the person in the book used Jasmine, and it worked by moving the concentration of the scent of the seizure to the scent of the oil.
c) for people who have taste aura's : (this is me)...always carry with you something that you can eat, such as a small bar of chocolate. Sugar was carried out in this experiment, but just using sugar didn't deter the taste of the aura, so the book suggested chocolate. I would say another good one would be flavoured glucose tablets.
d) for people who have motor aura's : this is where you have some kind of movement - a common one being where the head moves to the side. Using other parts of your body, you can deter the sz by moving the particular in a different direction, ie. if it's the head moving to the side - use your hands to move the head in the opposite direction. Another good thing for people with motor aura's to practice is to simply move around when they occur.
So, there you go - just a few suggestions from things I have read, and things I have practiced.
I hope this works for you all, and we can get rid off the damn problem ! :banana:
1. I started taking Magnesium a few weeks ago, 1st thing in the morning. It's a low dosage of 250mg (about 83% RDA) which could be increased if necessary, but I feel I don't need to at the moment. This seems to 'pick me up' quite well in the mornings, and doesn't have any contradictatory effects to my AED's.
2. I'm a person who gets aura's before a seizure, so one of the lucky one's I guess. In the book it quotes that one of the things we can all practice is deep-breathing, preferably twice a day if you can. Just sit back, or lie back, whichever you prefer, and take in as much air as you can, for say a count of 5-8...and then release all the air from your lungs (which none of us are using to their full potential during our normal everyday lifes). Continue to do this for about 10 minutes, if you have the time.....something is better than nothing, if you can't manage the 10 minutes....
....so anyway, back the deep-breathing and aura's. For the past couple of nights, I've had the beginning of an aura where I get an electrical taste sensation. As soon as this arrives, I begin practising the deep-breathing technique as quoted above. I've found that as my concentration is deferred to the deep-breathing, the seizure gets zero focus, and doesn't happen. Now whether that's coincidence at the moment, or whether it's actually working is another thing to resolve with more practice in future events. But it's definitely worth giving a go.....it can't cause you any harm, and can only help increase your lung capacity anyway - so go for it.
3. The other interesting thing I read in the book relating to aura's is other ways to deal with them :
a) for people who have sound aura's, where you may 'hear' things before a seizure : deter the seizure by making other sounds, or listening to some music, or any other form off noise that is available to you at the time.
b) for people who have smell aura's : carry around a small bottle of essential oil with you, and when you get the dreaded smell of the aura appear, sniff the scent of the essential oil. You may need to look up what essential oils are okay for you, all I know is the person in the book used Jasmine, and it worked by moving the concentration of the scent of the seizure to the scent of the oil.
c) for people who have taste aura's : (this is me)...always carry with you something that you can eat, such as a small bar of chocolate. Sugar was carried out in this experiment, but just using sugar didn't deter the taste of the aura, so the book suggested chocolate. I would say another good one would be flavoured glucose tablets.
d) for people who have motor aura's : this is where you have some kind of movement - a common one being where the head moves to the side. Using other parts of your body, you can deter the sz by moving the particular in a different direction, ie. if it's the head moving to the side - use your hands to move the head in the opposite direction. Another good thing for people with motor aura's to practice is to simply move around when they occur.
So, there you go - just a few suggestions from things I have read, and things I have practiced.
I hope this works for you all, and we can get rid off the damn problem ! :banana: