rakowskidp
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Our oldest boy, Jacob, was diagnosed with autism when he was a few weeks short of his 3rd birthday. Now, he's 14 years old, and 3 months before his 14th birthday, experienced his first tonic-clonic seizure. He's since had 3 more, averaging about 38 days between seizures. Has anyone seen anything remotely like this?
Three years ago, he started exhibiting very strong head tics. He would slowly move his head backward, and then violently snap it forward. This will typically happen 4-5 times before it subsides. His neurologist prescribed medication for the tics that initially seemed to provide significant relief - that is, until he had his first tonic-clonic seizure. Now it's practically out of control.
For many years, he's also had episodes where he'll stand completely still and close his eyes for several seconds while becoming completely unresponsive. The doctor doesn't seem to think this indicates seizure activity, but I'm not so sure.
He underwent a multiple-day EEG at a local hospital, which ended up lasting 36 hours (until he could no longer handle the sensation of having leads applied to his scalp). Results of the EEG were normal, and his doctor's initial diagnosis is extra-temporal epilepsy.
Any advice or suggestions are most welcome. Thanks!
Three years ago, he started exhibiting very strong head tics. He would slowly move his head backward, and then violently snap it forward. This will typically happen 4-5 times before it subsides. His neurologist prescribed medication for the tics that initially seemed to provide significant relief - that is, until he had his first tonic-clonic seizure. Now it's practically out of control.
For many years, he's also had episodes where he'll stand completely still and close his eyes for several seconds while becoming completely unresponsive. The doctor doesn't seem to think this indicates seizure activity, but I'm not so sure.
He underwent a multiple-day EEG at a local hospital, which ended up lasting 36 hours (until he could no longer handle the sensation of having leads applied to his scalp). Results of the EEG were normal, and his doctor's initial diagnosis is extra-temporal epilepsy.
Any advice or suggestions are most welcome. Thanks!