julie wishes
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How many people taking anti seizure medications experience breakthrough seizures?
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I am.![]()
I'm glad to hear that. 217 people looked at this post. Funny so few answered it. I wish more would. Especially if seizure free.
Nakamova those two little words just brought the hugest smile to my face. We need more success stories rolling through these posts. It gives hope and inspiration to all.
Jon had one breakthrough tonic/clonic during 3 1/2 years of being on Topomax. Then, he started having more breakthroughs -- about one every 2 or 3 months (all tonic clonic).
Increasing the medication amount did not work. Instead the seizures became more frequent, and he started having daytime seizures, which he'd never had before. Also started having tonics along with the tonic clonics.
Changing meds (Trileptal, Lamictal, Depakote) didn't help -- just made things worse. By that time, we couldn't call them "breakthroughs" any longer -- they were worse than before starting meds in the beginning!
Ketogenic diet gave him 11 months of NO seizures, but then he started having breakthroughs -- about once a month. Now back to horrible nightly seizures, but apparently thyroid and other issues bringing these on this time.