dylanreich
New
- Messages
- 3
- Reaction score
- 0
- Points
- 0
Hi everyone, I'm new to this forum, but I'm very excited to have found it. I was hoping that some sense might be able to be made from my symptoms...
Starting off: I am a 16 year old high school senior. During 4th-6th grade, I was diagnosed with, as I recall, "primary generalized epilepsy," with I believe "absent seizures." Along with that was constant head and ear pain. I was put on medication (I cannot remember the name, but it was effective), and I was weened off of it and essentially "grew out" of my symptoms.
Complicating all of what happened, I have a cyst in my brain that was believed by one of two doctors that I saw to be causing problems, but it became a non-issue after my EEG and resulting medication that worked and I was eventually weened off of.
Fast-forward to two weeks ago: My head and ear pains are back, but now worse. I can assuredly say there are the exact same as when I was younger, and the "absent seizures" are back. However, since two weeks ago, these symptoms (and *new* symptoms have gotten progressively worse, causing me to come here.
Everything here-on-out is new: Within the past week, there have been three (2 were two nights ago, very close in time) instances where my vision has gone black for a second. In addition, I have had lots of body movements out of my control. The worst was two nights ago while at my desk and my right arm resting on my desk, it jerked all the way up and to the left to about my chest area. Along with that, there have been many occurrences of all of my limbs to seemingly all slightly left out of my control. This happens more often with one or both of my legs, where they will sort of move a direction and be out of my control. The WORST (although nothing like what some of you guys have experienced, I'm sure) is a couple occurrences when I've been trying to go to sleep where I lose whole control of my body and I sort of feel a shiver go up from my feet to my chest/head and I have to wait to be able to "snap myself out of it."
Most of the last paragraph comes after the MRI (which the technician says shows my cyst didn't change in size all of these years, possibly erasing the idea that cyst growth has caused these new things, but he's just a technician, so we'll see) I had a few weeks ago. I have a scheduled appointment with my old neurologist at UCLA on December 22nd, but I came here because everything has gotten a lot worse since my old and new symptoms have come.
Can anyone make any sense of all of this? Thank you to anyone who might be able to help me, I really appreciate it.
Starting off: I am a 16 year old high school senior. During 4th-6th grade, I was diagnosed with, as I recall, "primary generalized epilepsy," with I believe "absent seizures." Along with that was constant head and ear pain. I was put on medication (I cannot remember the name, but it was effective), and I was weened off of it and essentially "grew out" of my symptoms.
Complicating all of what happened, I have a cyst in my brain that was believed by one of two doctors that I saw to be causing problems, but it became a non-issue after my EEG and resulting medication that worked and I was eventually weened off of.
Fast-forward to two weeks ago: My head and ear pains are back, but now worse. I can assuredly say there are the exact same as when I was younger, and the "absent seizures" are back. However, since two weeks ago, these symptoms (and *new* symptoms have gotten progressively worse, causing me to come here.
Everything here-on-out is new: Within the past week, there have been three (2 were two nights ago, very close in time) instances where my vision has gone black for a second. In addition, I have had lots of body movements out of my control. The worst was two nights ago while at my desk and my right arm resting on my desk, it jerked all the way up and to the left to about my chest area. Along with that, there have been many occurrences of all of my limbs to seemingly all slightly left out of my control. This happens more often with one or both of my legs, where they will sort of move a direction and be out of my control. The WORST (although nothing like what some of you guys have experienced, I'm sure) is a couple occurrences when I've been trying to go to sleep where I lose whole control of my body and I sort of feel a shiver go up from my feet to my chest/head and I have to wait to be able to "snap myself out of it."
Most of the last paragraph comes after the MRI (which the technician says shows my cyst didn't change in size all of these years, possibly erasing the idea that cyst growth has caused these new things, but he's just a technician, so we'll see) I had a few weeks ago. I have a scheduled appointment with my old neurologist at UCLA on December 22nd, but I came here because everything has gotten a lot worse since my old and new symptoms have come.
Can anyone make any sense of all of this? Thank you to anyone who might be able to help me, I really appreciate it.