Eli
Stalwart
- Messages
- 392
- Reaction score
- 1
- Points
- 66
By the grace of God I graduated college last fall, finished the massive medical stuff at the epilepsy center in CA and moved back to the east coast. We looked at houses, bought one this spring and I settled in expecting that a more routine, slow paced lifestyle would mean an improvement in my seizure activity. I don't drive, I only get out a few times a month, I watch my diet and I have too many triggers so I don't do anything stressful or exciting.
I track everything, sleep, food, moods, hormones, cycle, daily activities, etc.
I painted all the walls in the house in April and noticed that the smell was a bit much but it was cooler then and I left the house open to air out. Heat is a trigger so I keep the house at 65-67 degrees and this heat wave about killed me.
So my point and question...
It's just me and the dog so the house doesn't need much cleaning as long as I clean up as I go. I usually wash sheets and vacuum one day a week. The bathrooms and anything having to do with bleach, comet, strong stuff I usually do on the same day. (Hate scrubbing tubs you know!)
This weekend I was working with a product called "goof off." Someone had painted the tiles in both bathrooms and it looks horrid, plus its peeling. So like a rocket scientist, I decide to work on removing the paint from the tiles. The product works great but oh dear god, it is strong. So I've spent the last couple of days laid up, having multiple seizures (at least 8 I am aware of) and still feel horrid.
So I looked back through my calendars and noticed that the days when I cleaned the bathrooms, (using bleach, comet, toilet bowl cleaner, clorox wipes) I also had an increase in seizure activity. Year to date I am averaging 7.9 seizures a week, since moving I am averaging 6.1. The # of t/cs have been reduced so many of them are partials.
Anyone else notice problems when using cleaning supplies, chemicals, etc?
Or comments in general?
I know I am sensitive to smells.
I track everything, sleep, food, moods, hormones, cycle, daily activities, etc.
I painted all the walls in the house in April and noticed that the smell was a bit much but it was cooler then and I left the house open to air out. Heat is a trigger so I keep the house at 65-67 degrees and this heat wave about killed me.
So my point and question...
It's just me and the dog so the house doesn't need much cleaning as long as I clean up as I go. I usually wash sheets and vacuum one day a week. The bathrooms and anything having to do with bleach, comet, strong stuff I usually do on the same day. (Hate scrubbing tubs you know!)
This weekend I was working with a product called "goof off." Someone had painted the tiles in both bathrooms and it looks horrid, plus its peeling. So like a rocket scientist, I decide to work on removing the paint from the tiles. The product works great but oh dear god, it is strong. So I've spent the last couple of days laid up, having multiple seizures (at least 8 I am aware of) and still feel horrid.
So I looked back through my calendars and noticed that the days when I cleaned the bathrooms, (using bleach, comet, toilet bowl cleaner, clorox wipes) I also had an increase in seizure activity. Year to date I am averaging 7.9 seizures a week, since moving I am averaging 6.1. The # of t/cs have been reduced so many of them are partials.
Anyone else notice problems when using cleaning supplies, chemicals, etc?
Or comments in general?
I know I am sensitive to smells.