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On other fronts, we were at an event sponsored by my husband's department on Friday night, and another family was there with their elementary aged boy in a wheelchair. Turns out this boy got the same virus (apparently) that Jon got and is still paralyzed in the one leg after a week. And this boy doesn't have epilepsy. Our neurologist was assuming that Jon's temporary paralysis was the Todd's paralysis that some people get after a seizure (and which goes away in a day or two). But the odd thing is that Jon was walking around an hour or so after the seizure, but then was paralyzed in the left leg the next day. If it were Todd's, would he have been immediately paralyzed rather than the next day?
So, I went online, and the CDC has mention of a new virus that is affecting elementary aged children around the country (34 states). It starts as an upper respiratory infection, and then in some children progresses to neurological events, such as seizures and on-going paralysis (accompanied by lesions on spinal cord and brain stem). Something like polio. They think it's some sort of entero virus.
http://www.cdc.gov/ncird/investigation/viral/2014-15/investigation.html
So, now I'm wondering if Jon's seizure and temporary paralysis was caused by this virus that affected the other boy. And, if so, why did Jon bounce back, when the other boy (and most other children with this virus) remain paralyzed? Could it be the neuroprotective effect of the Ketogenic diet? Or the probiotics he was on? Or the Zonegran?
Karen,
Maybe you and the parents of the other child can compare notes to look for similarities and dissimlarities? It may be worth a try to get one of the kids' physicians to get blood samples of each child if that will help determine if they have\had the same infection.
Considering the CDC investigation, it may be worthwhile to document as well as you can, his symptoms as they came on, change, improve, whatever. As with side effects of meds, the information you gather may help point you to what you can do to help his recovery.
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